Small jerks that occasionally lead to gran mal

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

smporterpdx
New Member


Date Joined Sep 2014
Total Posts : 1
   Posted 9/19/2014 11:50 AM (GMT -7)   
I've been experiencing what I can only explain as hand tremors that lead to full body "glitches" or mini seizures. These full body glitches can range from feeling like I'm about to fall over for a brief second to actually dropping to the ground. It depends on how long the "glitch" lasts but when they happen I lose muscle control and consciousness. Sometimes its just one or two in a row and sometimes I get hit with really bad bursts of them every 10 to 30 seconds until I take something to help, get back to sleep, or worst case scenario I hit a gran mal. If that happens I'm out for a few mins. After any gran mals my brain kinda resets and although I feel drowsy and slow, I will not have a single glitch the rest of the day. (So far)
They first started when I would wake up after a really bad nights rest. Now overtime they have progressed to occurring before or after sleeping when I feel tired.
I've noticed stress, thinking too hard, and less light in the room all have an effect on how bad they get. The light seems to have something to do the ability of my eyes to focus on a singular object. I've also noticed when I am having a lot of glitches I can lessen their intensity by focusing on my breathing and pointing my finger in front of my face and moving it in and out (kinda how a paramedic would to see if your able to keep focused). Not sure why it helps but it does.

I've had an MRI... Not sure if they did an eeg when I was in the hospital. It was during my first big gran mal and it all kinda happened so fast. But the doctor was very nice and told me he couldn't find what caused the problem. My first two gran mals went this way. Doctors both said they didn't know what caused the seizures. One prescribed ativan to knock me out when the glitches were really bad and they helped. A LOT! But I'm also trying to avoid taking medication. I've gone gluten free, started working out, and generally eating healthy. I've tried everything but they very slowly seem to be getting worse.
One thing I'm certain of is that my seizures are predictable and primarily effected by sleep. However I'm starting to worry because, like I said, they are progressing. I don't have to miss a night of sleep to start jerking. I can just be late getting into bed and start having them.

Any ideas on what to do next? Anyone experience anything like this? I've looked around a lot on the web since they started and have yet to find anything or anyone who has a similar experience. I finally have health insurance coming through so I will he able to afford getting tests and medication if necessary. I really feel like they are non-epileptic due to my ability to control and plan for them. Any advice?

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 668
   Posted 9/20/2014 12:22 PM (GMT -7)   
On a related topic;

Another bad side affect from long term use of Dilantin.

I don't know if this has been posted before but here it goes anyway.

I've found out several years ago that I can no longer make smooth movements such as:

When driving, I can no longer move the gas pedal or brake in a nice easy motion, just "jerky" motions like a ratchet wrench.
It results in hard braking or quick starts. It also effects other things such as operating a computer mouse. (no accurate control, just jerks) or doing fine precise work or helping my wife with the clasp on her bracelet or necklace.
________________
Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.

m.ferra
New Member


Date Joined Jan 2015
Total Posts : 1
   Posted 1/31/2015 3:11 PM (GMT -7)   
I am responding to "jerking" twitching and eventually build up to grand mail post!!!! Your not alone!!!!! I ham 49 and have been epileptic sine 3!!! Have broken my back 13 times and only started getting auras after 35..the twitching build up is what my neuro calls putting wood on the fire that builds up to a bonfire of a grand mail clinic tonic!! I have been on dialantin, valporic, keppra, you name it ALL of them NONE worked and surgery was out. Final the combo of zonegran for grand mall (400 mg daily) and celontin for twitching to cut the grand mall off at the pass (900 mg) daily worked BT that time those doses didn't zomify me after all it was my norm. But still have break thrust and break things with falls..have oster-genisis- imperfects..lucky Me yeah but I'm alive. Alive..and after three near deaths zonegran is a drug under used and lifesaving. Waring rare side effect in beginning is similar to chemo..throwing up and loss of huge clumps of hairs but it passed in 9 mos. And its rare..again I was lucky? Hell of a diet plan lost 50 lbs..and was thin to start. Dont give up....hugs....now to talk to a posted about er ******scwho treat us like junkies!!;;
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 2:07 PM (GMT -7)
There are a total of 2,904,974 posts in 318,817 threads.
View Active Threads


Who's Online
This forum has 158187 registered members. Please welcome our newest member, Zenfinity.
377 Guest(s), 12 Registered Member(s) are currently online.  Details
RedLabel, Sophalex83, JNF, hammer8, Kat1000, ArtAngel, Jamie1970, Maverick6981, HopeNheal, dbell, FLBeachgal, iPoop