i haven't had a seizure in a LONG time, I just got my license back...
I was at PT for shoulder surgery and woke up in an ambulance, apparently having seizures.
when wheeled into the hospital i heard comments such as:
"she's full of crap"
"she's just faking"
"get a UA, it will be dirty as Hell"
"Still seeing Dr. Jordan(pain dr) to get your pain meds??"
"whats wrong with her arm" nurse-"somethings she's faking to get her meds"
"you can't fake this sh*** with me, I don't fall for that crap"
"she has no veins, she's used them all" (I do not have veins but not due to drug use, I have a port-a-cath)
a nurse twisted my eye brow to get pain response, a male nurse kept whispering "its Angela (last name) and the nurses would just go ohhh, like i was some frequent flyer drug addict. I haven't been there for a seizure in almost a year, and haven't been there since I've been seeing that PMD she spoke of, I have no idea how she knew....
and on and on....
I do have a history of seizures, and yes they are non-epileptic, but apparently they all think I'm some druggy, faking my disorder, and seeking pain meds.
I was left in a room for hours before seeing a dr.
Eventually was given Keppra IV and got better.
I had the director of the ER come to my room, and will file every complaint i can.
I am so tired of the hell I go through, and to add being treated like a total junkie off the street, well worse than that, makes me so very furious.
yes i have CP, yes I have a seizure disorder that you don't understand, yes I know that ER way too well, but in NO WAY do I deserve to hear such things being said. IF they feel that way, F*#* them, but don't dare stand over me and say these things. Even the EMT said, she wasn't full of crap seizing in my truck with an O2 of 75...
(after a seizure I can't respond but I can hear sometimes, this is how I heard these things)
I don't understand and it hurts so very bad.
they wouldn't let me talk to them and gave me another nurse that was nice, but My heart hurts so bad.
Dx's:CP, Depression/anxiety, Non-Epileptic Seizures, repeat Rt shoulder dis
locations/surgeriesx3, Nerve damage after IV infiltration wi/ chemical burn in left arm; endo & ovarian cyst; chronic Lyme...I could go on but will spare you all
Meds: pain meds, nerve meds, GI meds, holistic things, etc.
doTERRA essential oils-Frankinsense, Lavender, Balance,peppermint, Clary sage, LOVE my OILS!