Temporal Lobe Epilepsy

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Bandras1
New Member


Date Joined Nov 2015
Total Posts : 1
   Posted 11/9/2015 6:26 PM (GMT -7)   
Hello,
My name is Brad. I was recently diagnosed with temporal lobe epilepsy. I'm 26 years old. about 3 weeks ago, I was driving and started feeling very nervous and sweaty. I was feeling uneasy all day long (what I've always just assumed was anxiety, never been treated). Now while I was driving having those feelings, I started seeing a white light flash in my right eye. Now this is the first time this has ever happened to me. I blacked out and somehow managed to drive close to 2 miles before getting into and accident. Luckily, no injuries.

Now I just had some questions that may have not been cleared up by the neurologist.

1- Any way this could have just been a panic attack and not a seizure?
2- I was prescribed Keppra, which I'm so hesitant on taking because of the horror stories of AED treatment. Will seizures become worse or happen more frequently if I don't take?
3-I work in an office and stare at a computer screen for most of my day. Will this have any effect on me?
4- Can epilepsy be cured? My doctor said it's possible for me to stop taking medicine after 2 years.
5-Ultimately, I'd like to get opinions from others on if the possible side effects from the medicine are worth it considering this is the first time something like this has happened.

All opinions are greatly appreciated as I am new to this and really trying to understand this disease. Thank you in advance.

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 668
   Posted 12/4/2015 2:20 PM (GMT -7)   
Hi Brad,

My name is Randy, I've had a "seizure condition" for 36 years so I think I have enough experience to give an opinion. (I prefer to be called a person with a seizure condition rather than an "Epilectic" b/c of the stigma attached to it)

As per your questions:

1) It is possible that this could be a panic attack but your neurologist should be able to tell through an EEG test or CAT scan. In the meantime, DON'T go off your medication and risk another attack.

2) Everybody hates taking MEDs as all MEDs have side effects however it's better than the alternative. If you find the side effects are too harsh, your Dr. could prescribe another MED.
It might not work that great at first so the Dr. may have to alter the dose. This could take several months or even years.

3) Re: the computer screen, this may or may not effect you, everybody reacts different.
I've read and experienced myself that an LED screen is better for minimizing the effects it has on seizures.

4) Epilepsy cannot be cured but can be controlled.
Don't go off the MEDs after 2 years, You have to go seizure free for at least 2 years to keep your drivers license as this is a legal requirement.This could also effect your insurance rates.(All Doctors are required by law to report to the DMV re: any patients with a seizure cond.

5) If you change your MEDs or stop taking them without the Doctor's approval, You could risk a seizure even worse than the first one or if you should have a car accident, you insurance will not cover you.

Do you want to take that chance?

I hope this helps answer some of your concerns.

Randy
Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.

JulesKanter
Regular Member


Date Joined Oct 2015
Total Posts : 124
   Posted 12/10/2015 8:35 AM (GMT -7)   
Hey Brad

Welcome to the Forum.

That was a scary experience. I urge you to refrain from driving as much as possible. You should be more cautious especially if you don't know what may trigger your episodes.
Now with regard to your questions.

First, it may be possible that what you experience was a panic attack although from what RanMan already mentioned a neurologist will be able to tell. If I was going to speculate I would have to say that what happened is you're already suffering from anxiety and that triggered the seizure.

Second, honestly I'm not fond of medications and I don't like the side effects it impose but I also believe on it's necessity. I try other methods as much as possible but when nothing else works I then take up medication. And I always consult my clinician regarding my treatment decisions.

Third, it actually would depend on how you gets exposed on the computer screen and the things you see and there are actually computer screens that are not threats.

Fourth, there are some cases that claims that epilepsy was cured. In my opinion epilepsy can be lived with by handling the symptoms. Once the symptoms are controlled epilepsy and seizures will subdue but we can not be certain that it's actually gone for good.

Lastly, side-effects are inevitable. It would depend on your body on how much you get affected. I'm not fond of medication because of this reason. Sometimes meds affect my functionality big time. That's why I consider other approaches and take meds only as a last resort. Other approaches in handling epilepsy are nutritional supplements and diet. Endoca hemp products have anticonvulsant properties that suppresses seizure activity. This product is 100 percent natural meaning that it may have little to no side-effect. It also have many other medical properties which are all beneficial. And ketogenic diet is a eating regimen which is said to reduce epileptic seizures

Janhop
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/17/2017 4:51 PM (GMT -7)   
Headache after temporal lobe tommy lasts how long?

Janhop
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/17/2017 4:54 PM (GMT -7)   
Headache after temporal lobectomy last how long? Sorry about the spell check error above.
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