My last EEG was several years ago. As far as medicines-I need to ask about Lyrica, the one someone here posted about. I've been on Tegretal, Trileptal, Keppra, Neurontin, Depakote, Dilantin, Phenobarbital (nightmare!), Topomax (I think), Zarontin, and Zonogran. My neurologists say I've taken them all and there are no more to try.
As it is, I consider myself lucky and blessed. My seizures are frequent but they are myoclonic. I think it's myoclonic. Doctors won't say if I'm right, so I'm only using the description of myoclonic seizures that I've read. And more of my problems come from being on the autism spectrum than epilepsy. The hardest part of epilepsy for me is that I've had more than one doctor tell me I've taken all the medicines there are. And for personal reasons the VNS isn't right for me. (Does the VNS even work on non-epileptic seizures?).
So, if the State Mediciaid will pay for me to see him and for an EEG, I will do it.
Jennifer-are you ok? (I mean really ok?).
How is everyone else?