Welcome to HW. What type of seizures do you have? Do you know where the seizures originate? I have had epilepsy for almost 25 years and can identify with your feelings of hopelessness. The first drug I was on was Tegretol, but I couldn't stay on it due to a drug rash. Like most people, I have been on various combinations of drugs in the attempt to control seizures. Topamax helped me a lot, but the side effects were so horrible, I practically begged my neurologist to get me off it. Although the meds helped, the seizures were never completely under control.
Hopefully MandiAnn will see your post. She has the same type of hormone-sensitive epilepsy. I'm sure she will check in soon. My seizures were always much more active during the start of my menses and seemed to respond somewhat to hormone treatment.
Although I really liked my neurologist, I was really ready to move on to an epileptologist. An epilepsy center approached my problem from a different perspective, and I eventual had brain surgery this summer. It was the best thing I ever did. I still have some problems like headaches and side effects from the surgery, but so what? Even if I feel bad sometimes, I go out every chance I get now. Getting out of the house is the best therapy for healing.
Hang in there. I always think about my kids and the people that love me - that's what keeps me going. Don't ever give up Hope, HUGS, Glenda
complex partial seizures since 22