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machz_55
New Member


Date Joined Sep 2016
Total Posts : 1
   Posted 9/21/2016 9:15 AM (GMT -7)   
Had a severe seizure at the age of 45, I have been on dilatin (350mg) for 3 years now. After all the testing's (MRI,CAT Scan, Light testing, etc.) , was narrowed down to hormones (premenopausal), had a hysterectomy. Life seemed better, but now my doctors don't want to take me off of the Dilatin. I have been experiencing the shakes recently and uncontrolled muscle twits normally in my hands and arms. Blood work is fantastic. Is this the side affects of the drug? The last time I seen a neurologist was 2 years ago as there has been no seizures and no complications from the drug. Is this just something I am going to live with? cry

Peugeot
Regular Member


Date Joined Dec 2016
Total Posts : 30
   Posted 12/22/2016 12:48 PM (GMT -7)   
Halo
Ive been on dilantin for 20 years and I havent had a seizure for 17 years but I still sea a neurologist every 6 months for a checkup. In my case my EEG was normal for 7 years before any changes were made to my medication.

Peugeot
Regular Member


Date Joined Dec 2016
Total Posts : 30
   Posted 12/22/2016 12:50 PM (GMT -7)   
Halo
Ive been on dilantin for 20 years and I havent had a seizure for 17 years but I still sea a neurologist every 6 months for a checkup. In my case my EEG was normal for 7 years before any changes were made to my medication.

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 668
   Posted 12/23/2016 8:50 AM (GMT -7)   
Hi machz,

This is a side effect of the Dilantin and something you'll have to live with unless it's so bad that it's causing Probs. But then you have to ask yourself, would you rather have seizure control with slight muscle twitches or uncontrolled Seizures?

Randy
Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.
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