Post seizure panic attacks

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New Member

Date Joined Dec 2005
Total Posts : 3
   Posted 12/6/2005 3:39 PM (GMT -7)   

I've been diagnosed with "grand mal" epilepsy since the age of 10 (im now 35) and have had a total of about 5 seizures... I do consider myself lucky in comparison to last seizerure happened a month ago and was the fiersest ever (the one before was about 10-11 years ago).

During this last seizure I fell and hit my head and was apparently out for 20-30 min. (which is significantly longer that any other previous seizure).

I was taken to a hospital and was observed for about 4hrs and my neurologist confirmed that the level of Epival (my meds) in my system was fine.

However, after this last seizure I've been suffering from dizziness and panic attacks where I feel like I cannot breathe. I have never had a single panic attack in my life and have never felt anything after a seizure other than a headache for about 24hrs. I've mentioned the diziness to my neurologist and he claims that its normal to feel this for a few weeks after a severe seizure... I obviously mentioned the hit on the head and said that it might be a good idea for an EEG or a scan...he said 'No' and continues insisting that it is's been a month now and even though the diziness frequency is diminishing over time..I am still very concerned...

Any adivce? Should I continue trusting my neurologist?

Many thanks

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 12/6/2005 10:25 PM (GMT -7)   

Hi Pugy,

IMO you should get a second opinion and/or mention it to your family Doctor.  Although I'm not in the medical profession, it sounds to me like you should have some sort of test, either EEG, MRI, CAT scan etc. I speak from 27yrs of experience with epilepsy and have an EEG every 2yrs.

I can't believe that you're neurologist said right out NO. nono


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

New Member

Date Joined Dec 2005
Total Posts : 3
   Posted 12/7/2005 8:24 AM (GMT -7)   
Indeed.. logic would dictate a test; my previous neurologist (who unfortuntely retired due to health reasons) would have me undergo an EEG every year whereas my current neurologist hasn't performed a single EEG in the last 15 years... now after this incident I'm strongly starting to doubt his competance..

Not only did he say NO to a test/scan, he said that he could not see me when asked. He only looked at my bloodtest that was FAXed to him from the hospital to confirm that I had the correct amount of Epival in the system and gave me a diagnosis "over the phone" deciding that the meds dont need adjusting and that my head was Ok...I think I just answered my own question: he's definetly incompetant!

New Member

Date Joined Dec 2005
Total Posts : 3
   Posted 12/7/2005 12:43 PM (GMT -7)   
MEGA thanks to everyone who has taken the time to answer my question and confirm my suspicions... you're awesome... I really appreciate everyone's support, input and promptness in replying to my posts... I am very happy to have found this forum :-) thank you thank you :-)

Regular Member

Date Joined Feb 2005
Total Posts : 241
   Posted 12/7/2005 8:03 PM (GMT -7)   

Hi PugY-

I caught your post tonight... welcome to HW.  Sorry that you are having all the troubles recently.  It's enough to have all the physical misery and then on top of that to have to go through the wondering what you are going to do with your doctor. 

Sounds like there could be many options at this point.  No matter what steps should be done next, one thing is for certain - your neuro should have shown you more concern and a more definite plan for your care and follow-up.  The key to a good working relationship with your doctor is Communication, and if you aren't getting it, don't hesitate to call, call, call him and make your symptoms known or make an appointment.  If you don't get at least that much, you're certainly going to have trouble getting better. 

You should feel Confidence in your doctor, not incompetence. 

If it was me, I would be thinking about moving on to someone else.   Every neuro does things differently and getting a second opinion might also shed some light on your problem and perhaps a different treatment/drugs.    

I'll be thinking of you,

HUGS, Glenda :-)

complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d

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