Medication change already..looking for advise

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New Member

Date Joined Dec 2005
Total Posts : 4
   Posted 12/29/2005 3:11 PM (GMT -7)   
Hello All,
   Well, Alaina (20 Months old) has been on Keppra now for 2.5 weeks. I called the dr on Monday and told him that she was still hving seizures maybe even more often and that her sleep pattern was erratic. (waking up thru the night, not going back to sleep)  Well I stayed home Monday and Tuesday waiting to hear back. Well of course while I was out on Weds. he called and left a message saying that he wanted to change her to Topamax.
When I got the message 2 hours later I called back and left a message saying that I was sorry that I missed his call but that i would appreciate a call back from him because I would like to speak to him before changing meds......Well, that was more than 24 hrs ago and still no call.
 I don't know if I should go ahead and start the Topamax tonight or not.
 In your opinion was 2 weeks enough time to give Keppra to work? I might add that the first week she was on .5 ml twice a day. The second week it was increased to 1 ml twice a day. I saw a little bit of behavior change but nothing intolerable. From what I understand both amounts were small for this drug. (she is about 23 lbs)
I wanted the Keppra to work sooo bad. It seems to have the least side effects. Now this Topamax seems to have alot more side effects such as weight loss. I couldn't imagine her losing weight.
A friend of mine takes it for migraine and she said it makes her slow feeling. If you remember from my first post Alaina has Down syndrome. With the developmental delays that come with Ds she doesn't need a drug that will slow her more.
I have to say I feel so uninformed about this whole diagnoises. Now to not be able to get in touch with the dr or his assistant is very frustrating. I only want to do what is right for her.
Would it make since to try the Keppra one more week at a higher dose?
Any advise you could offer would be appriciated.

Regular Member

Date Joined Feb 2005
Total Posts : 241
   Posted 12/29/2005 10:15 PM (GMT -7)   

Hi Donna-

I never had a significant change in my seizure pattern with only 2 weeks of a new drug.  I wonder why the doctor wants to change her medication so soon.  Did you try calling back?  Until you can talk to the doctor or his assistant, you might continue to be without a suitable answer.   And what you need right now is answers to your questions and attention to the problem at hand.  

It isn't unreasonable to suggest to the doctor to continue with the Keppra at a higher dose for another week, assuming you are able to get the message to the doctor in the first place.  Insist on a call back that day if you can't speak with the doctor.  Call them back if you don't hear anything by the end of the day.  A reminder sometimes ensures that you will get called back.   I would think it is easier to adjust the Keppra than start a whole different drug.  

Hope things settle down soon.  Let us know how she is doing.   HUGS,  Glenda  :-)      

complex partial seizures since 22
epilepsy surgery, June 2005

Veteran Member

Date Joined Sep 2004
Total Posts : 775
   Posted 12/30/2005 9:09 AM (GMT -7)   
Glenda gave you some good advise. I tell people this all of the time. I am on Keppra and it took 3 whole months for my body & mind to adjust to it. Now I am doing fine on it. Please try to give it more then two weeks. I don't think that is giving the med a sufficient amount of time to work. Also, call that Dr. until you get in touch with them. Hoping all goes well, Tracy
 25 years old
Nursing Student

Veteran Member

Date Joined May 2003
Total Posts : 1251
   Posted 12/30/2005 7:14 PM (GMT -7)   
I believe you should change medications. If her seizures increased then yes change. Also, the patient is a baby with Down's--much different from an older patient with different concerns. As far as the new medication causing "slow" feelings--it may but I don't believe the fact that your child has Down's gives you more to worry about.

40 years old
25 years with grand mal seizures now controlled with TegretolXR

Regular Member

Date Joined Apr 2005
Total Posts : 26
   Posted 1/1/2006 5:40 PM (GMT -7)   
My son was on Keppera for numerous months.He had alot of agressive behavior,and wanted to constantly sleep.His seizures were not controled.He started on Topamax(about 3 1/2 months ago?) and has been doing fairly well,still not seizure free but this is the most his seizures have been controled.He has not had any problems with the Topamax as far as any side effects go(knock on wood).He takes the sprinkles extremely well for us twice a day..He will be two years old on January 18th!!.He is such a happy little boy now.He is delayed with his speech and is in speech therapy weekly..Seeing some improvement but he still has a ways to go with it.We are all happy with his progress so far though..I hope you can find the right medicine soon..You and your family are in my thoughts and prayers..I know what a struggle this has been for my family.I was estatic when I came across this website.It is nice to know that there are other people out there with the same problems and concerns.I do not post much, but do check in frequently and read other posts. I feel thing's are really starting to look up for us!.Hope everyone has a safe and healthy 2006!!

Thanks and HAVEGreat DAY!!


New Member

Date Joined Jan 2006
Total Posts : 19
   Posted 1/9/2006 5:56 PM (GMT -7)   
Hi Donna,

Wondering myself how it went with the Keppra? I know I did not do well with that medication but that was my experience as you have read others have done well. Hope all is well at your end.



Regular Member

Date Joined Apr 2005
Total Posts : 26
   Posted 1/9/2006 6:27 PM (GMT -7)   
Just wanted to let everyone know that I did receive an e-mail from Donna last nite.Her daughter had some med change's.She is now on Depakote.I told her several people on here were wondering how her daughter was doing.She said that she will post on here soon.
Take care,

Thanks and HAVEGreat DAY!!


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