I posted a few months back...i'm usually found on the lupus forum as I have an overlap of connective tissue diseases. I also have what have been thought to be partial complex seizures. They may or may not be part of the whole autoimmune thing I have going on. We are looking into that now.
I had a sleep study last month due to overwhelming fatigue for the past several months. it was recommended that I see a neuro specializing in sleep disorders based on fragmented, inefficient sleep, some hypopneas mostly during REM sleep thus reducing REM sleep time.
I initially took carbitrol, but was switched to keppra due to elevated liver enzymes. I take 3000mg/day. for the past two months, i have a 2-3 back to back days of "mini" seizures. They are mini in the sense that all of the elements of my aura are present; I don't think I lose contact with the environment altho I don't react to it.
based on the sensitivity I seem to have to several different drugs, the sleep disorder results, major memory "blanks", the other meds I take for the connective tissue disease, the dr. is scheduling me for a stay in the video/eeg monitoring unit. Hopefully this will shed some light on what is going on and if it is all related in some way.
Does anyone have any experience and advice for me on how to best "enjoy" my little get-a-way? Thanks!
SLE, limited scleroderma, Sjogrens, Hashimoto's, seizure disorder, Raynauds, anemia