Epilpesy and Attitude

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Regular Member

Date Joined Feb 2006
Total Posts : 84
   Posted 3/17/2006 1:51 PM (GMT -7)   
HI everyone, when I got epilepsy in school after lunch and lost my best friend.I was eleven years old My dad and my Dr. taught to have attitude.NOT FEAR!!!!!! TO THINK THAT I WAS AS GOOD IF NOT BETTER THAT THE NEXT PERSON !!

I am not belittleing your fear, I am trying to share a story about how hard the first year was for me,stoned on zarontion and mesantoin. Never taking any meds before in my life and now I am taking meds 3 times a day. That was what was drilled into me, as a child .

It may have made no sense at the time, but when I was 35 yrs old and lost control of my life those words that were drilled into me were a gift.

I am trying to pass this gift on to you.

Let go of the fear , fight to live and enjoy the moment,it will never come back!!!!

I have been fighting for my epilepsy stability since I was 35 yrs old I am now 50. I had 24 yrs of epielpsy stability before that , which I took for granted. Enjoy the moments that you have stability, don't waste it on fear. Life is for living!!!!!!!!

Someone who care about your quality of life.
Positive Person

Veteran Member

Date Joined Sep 2004
Total Posts : 775
   Posted 3/19/2006 11:44 AM (GMT -7)   
I think it is important to never let epilepsy get in the way of your dreams. Everyone is different. We all have different seizures, thresholds, triggers ect. But fear is a horrible thing to carry with you. I had that feeling and hated it. But over time I saw life does go on and I had to go on also. I am still in school carrying out my nursing dream. Only 4 months left until I graduate. This website is awsome and I tell all of my patients who have seizures (which is a good amount) to try to come here. Just know anything is possible. Take care guys! Tracy

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 3/19/2006 1:50 PM (GMT -7)   

Re: ATTITUDES (this also relates to Epilepsy and Employment)

There still is a stigma attached to this condition but if you think about it it's no different than an employee having diabetes or a heart condition.
I have to relate it to my situation.
I've had EP for 27 years and wanted to make this comment; "If a qualified person is not hired or is terminated from employment as a result of a seizure condition, it is considered a form of descrimination and a violation of your Human Rights" resulting in a hefty fine or jail time to the employer as per the Canadian Human Rights Act. The employer must provide adequate work accommodations and/or special needs required to do the job. My bosses thought that I was putting it on so I wouldn't have to do certain things. Through my employer (Government of Canada) they finally sent me to a "neuro/psyc" to examine me and DOCUMENT what I can/can't do. We have the right to request this type of exam, in MY case it was my employer that requested it. As a result of it being documented, my employer sent the results to "Health Canada" and since the job was being illiminated, the report showed that "as a result of the long term use of the meds, I could not learn new tasks "and requested that I go on DISABILITY and then medical retirement. That proved to my employer that I was telling the truth all along and NOT FAKING IT. Randy
diagnosed with epilepsy and Ulcerative Colitis in 1979.

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

Veteran Member

Date Joined Sep 2004
Total Posts : 775
   Posted 3/19/2006 8:35 PM (GMT -7)   
The stigma is there and that is why it is SO important to push forward and show and amaze everyone...anything whatever it is. sounds like you have been through alot. But through the junk must come something good. take care.

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