What to ask for at meeting?

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Beth B. in TN
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Date Joined Oct 2005
Total Posts : 83
   Posted 4/10/2006 7:46 AM (GMT -7)   
Okay, so now Kimmy is classified as other health impaired at school. Which means she has an IEP along with the 504. You may ask why did it take so long, but...she hasn't been in school hardly this year. Anyway I didn't know what to ask for. So that leads to this question. What sould I ask for, for her?
She isn't back in school, but I want to be positive and looking ahead for her. She already doesn't use stairs at school. They have a nurse on premises when she's there (because she has an order for diastat). Should I let them know if she's not feeling well around her cycle I may keep her home?
Is it just me, or does she do better at home-and is that because she doesn't have a panic attack over every little thing, or is it that she does eat small meals several times a day and doesn't get to feeling tired. Her blood sugar has never been low at the ER but I think if she feels tired she has more-is that so. Should I ask that she be allowed to snack or drink some juice?
What do you guys suggest. Is there anything to help her that I'm not thinking of asking for? I was thinking, she doesn't carry around a million books at home. Perhaps she should have a set of books at home so she doesn't have to carry about 50 pounds around all day. The lockers are all over and having one doesn't seem to help. Am I being silly? Help me know what to do guy. You're always great.
Beth B. in TN

Beth B. in TN
Regular Member

Date Joined Oct 2005
Total Posts : 83
   Posted 4/11/2006 9:26 AM (GMT -7)   
Ya'll do think I'm silly and overprotective. That's why I need your help. I won't think your flaming me if you say so. Just tell me what if any accomodations she may need. I don't know what I'm doing.
They're gonna test her for cognitive stuff because she was taken off her ADD meds and she just freezes now when she takes an essay test. She won't even write anything, afraid she's gonna really mess up. What can I do to help?

New Member

Date Joined Dec 2005
Total Posts : 15
   Posted 4/11/2006 9:44 AM (GMT -7)   


I have been thru alot of IEP's.

Sit down, take a deep breath and make a list. If you think she does better with snacks or books at home or anything else. Tell them.

Shes your daughter, not theirs. You know her needs better than anyone else. Dont let them intimidate you or her.

Your not being over protective or silly. Your being a Mom.

Good luck,


coffee 'n cigs
Regular Member

Date Joined Jan 2006
Total Posts : 69
   Posted 4/11/2006 9:41 PM (GMT -7)   
Beth, I have seizures after prolonged exposure to fluorescent lights. Do different types of lighting affect your daughter? Unfortunately, a number of institutional environments seem to have fluorescent lighting, because it is less expensive.
The best to both of you. I hope that something can be worked out that both you and your daughter are comfortable with and that life can move on peacefully for you.
Take care,

Beth B. in TN
Regular Member

Date Joined Oct 2005
Total Posts : 83
   Posted 4/12/2006 11:31 AM (GMT -7)   

Thanks everyone. Mandiann you're a sweetheart. You too, Edith. C&C I have wondered about flor. lighting. When she is in school she seems to have more seizures than at home. She once has one after a spanish teacher was turning off and on the flor. lights while saying "turn off the lights, turn on the lights." That is the only time she felt "weird" because of lighting that we know of. The doctor at the time said that she never reacted to lights "Strobing" during an EEG. So he thought I was overreacting. Anywhooo. I guess I should ask the new doc but it will be awhile before we see them again.


The problem I have is that if it isn't widely known and accepted the school officials act like I'm crazy. But...I say even if she thinks something affects her it can set off a panic attack. So....I guess when she gets back in school we'll see. Hopefully, with the new meds, she'll be better. She started feeling weird at church Sunday Night and had an attack. I got her to calm down by praying for her and getting her to breathe deeply. She didn't have a seizure. YEAH! Thanks for everything guys. I just need some perspective. IF I could put her in a bubble and her be healthy and happy, I just might do it at this point. Keep her all to myself. But that's not life or happiness for her for sure. I feel she is behind socailly. She won't even talk to guys hardly at all. She gets plenty of attention. She's gorgeous, 5 foot 8 and slim. When we go walking in the mall, if someone trys to approach her she wedges herself between me and the wall. I worry a bit. But...she is not quite 16 so there is plenty of time for guys. I can't beleive I'm worried she won't talk to guys. With the 20 year old, I was so worried she would talk to the wrong kind of guys. Go figure.


Beth B. in TN

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