Thank You Uhura and Randy, I really appreciate your response. As for medications, I have been through so many, its hard to remember them all. This is both seizure meds as well as anti-anxiety drugs etc. Currently, I am on Keppra, Klonipin, and Zoloft. I have seen several neurologists from Ohio to Texas and I am under the care of both my family doctor and a shrink who I see every 3 months to monitor the anxiety meds. I have had EEGs, EKGs, bloodwork, a spinaltap to rule out any serious physical illness such as menengitis, etc.
I am EXTREMLY sensitive to different lights, I can NOT be in a store or any type of place that has flourescent lighting, for any length of time or I will seize. Flashing lights, police car lights, strobe lights, natural sunlight coming through the trees etc. are all triggers for me. I cannot place video games, or first person games either. Also, if it is overcast out, or at a certian time of the evening, I have been known to seize in that shade of light as well.
I have been in the resturant business all my life, I have bounced around in different jobs, everything from office help to outdoor work trying to find a job that I can do where the lights/lighting will not trigger me, Needless to say, no luck yet. I do fine for a little while and then out of the blue, one will hit, causing people to freak out and the next thing I know, Im being carted off to yet another hospital for more testing. I do wear the med alert bracelet but it is amazing the lack of knowledge and panic that people have when someone goes down and is thrashing around. I can only imagine how scarey it is for onlookers who have no clue.
Heres the kicker though, since I was a kid, my seizures have no apparent pattern, sometimes, if I am having a really good day, I can spend a couple hours in a situation and do just fine, the next day I can do it igain and seize. I can usually tell when one is coming on but not always. I can go weeks without seizing and then have more then one in any given day, sometimes more. Its so strange. I have monitored my situation and triedto figure out what is going on at these times but there is no pattern. Any ideas? Also, I have never been to an epileptologist, I didnt know they even exsist. This is something I will be checking into.