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Elvina
New Member


Date Joined Apr 2006
Total Posts : 8
   Posted 5/10/2006 9:27 AM (GMT -7)   
Not sure whether I am posting this on the right forum.  My nephew, 2 months old, is suspected of having incomplete lissencephaly.  I am very ignorant about this disease. Appreciate if anyone can share some info on therapy and experience etc. Thanks.  Elvina

bowl300
New Member


Date Joined Jun 2006
Total Posts : 1
   Posted 6/2/2006 5:16 AM (GMT -7)   
Hi, I'm Wendy and I found this post through a search on Google.  My son has incomplete lissencephaly and I'd love to chat with you and share any info together.  Just click on the far left to send me an email.  ==Wendy

Post Edited (bowl300) : 6/2/2006 6:25:39 AM (GMT-6)


dawnmarie70
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/17/2008 11:19 AM (GMT -7)   
if you want congress to do something about lissencephaly, want research to help conquer this disability and make the insurance companies treat this like any other "known" disability and pay for it......
if you or someone you know has a child affected by this disability....
if you care about children and our children's children.....
then go to the link provided, read the grassroots petition, and sign it!!!
my nephew has this disability and i am running a grassroots campaign petition to make this known as a real disability like autism,etc.
not much is known about it and the people who suffer are on their own most of the time.
i want to make it known, have research done and make the insurance companies pay for it!!!!

here is the link

"http://www.petitiononline.com/camren/petition.html"

copy and post or cut and paste and post on every site you go on please.
its a matter of life and death for the children affected and the children of our future!!!!!!!


thank you and god bless

dawn nelligan
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