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hi im new to health well

Chronic Illness Forums
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Epilepsy
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hi im new to health well  
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mysticdreamer
New Member
Joined : May 2006
Posts : 13
Posted 5/19/2006 10:16 PM (GMT -7)
hi im mstic dreamer and i have had epliepsy since i was 24 years old it came all the suddenand i rember my frist seziure as it happened a few hours i have lived alone when i have had them i have had seziures in many weird places such as in the tub and in the mall on a bus and in a office i get so sick of going to er when i have them in pubic im on topamax right now i have the big daddys of seziures the grand mul
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andrew50
Regular Member
Joined : Dec 2004
Posts : 93
Posted 5/22/2006 2:55 PM (GMT -7)

Hi Mystic Dreamer,

Welcome to Healingwell. You'll find everyone here really friendly and full of good advice. (Except for me. Nowadays I'm just bitter.) Sounds like you're having a bit of a rough time. I found tegretol helped get rid of the 'big daddys of seizures' though still have plenty of small and medium sized daddys to keep me entertained. But different drugs seem to help different people.

Getting stuck in ER can be a pain, can't it, especially as it always takes them about 6 hours to check to you out again. Have you been hurting yourself when you have a seizure, falling down and so on? If so, do you get a warning when you're about to have one - feeling a bit awful before it strikes? (I think it might be called an aura). If you do, that's when you're supposed to lie down in a foetal position or something. Though I never had the nerve to do that if it was happening in public.

Regards,

Andrew

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mysticdreamer
New Member
Joined : May 2006
Posts : 13
Posted 5/25/2006 10:45 PM (GMT -7)
dear andrew i hope u read this but yes ihave aruras and they have changed since the on set of my epliepsy at frist id get deathy  sick to my stomach id throw up and id get this metalic taste in my mouth and stomach cramps it was horrbible and at tyhose times when i could id lie down but some times its very diffcult lol
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