suffered wit seizures from 36hrs old diagnosed at 9wks

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Carters mum
New Member

Date Joined Jun 2006
Total Posts : 1
   Posted 6/21/2006 11:43 AM (GMT -7)   
36hours old and noticed jerky movements, had several eeg and an mri nothing found at 5wks continued to have these episodes repeat eeg at 9wks and was diagnosed with vocal epilepsy weeks later still no improvement seizures getting worse stopping breathing going blue to find they had progressed as a result of a med that didnt suit to generalised secondary seizures, 5 months on and not only is it effecting his development but they are still under no control!  He cant support his head sit up or reach for toys etc doesnt look at you face to face as he doesnt know how to fix and focus due to the seizures this is why all this hasnt developt!

Post Edited (Carters mum) : 6/21/2006 12:59:17 PM (GMT-6)

Regular Member

Date Joined May 2006
Total Posts : 32
   Posted 6/21/2006 12:23 PM (GMT -7)   

I saw you in the chat and thought maybe I could help. I am still doing some research for you, but I did find one site that has information on epilepsy in children. It has some recommendations of how to handle small children with these problems to assist with development. I hope it might help. I will keep looking for you.

best regards, britt (sadfacedb)

Post Edited By Moderator (~Jennifer~) : 6/21/2006 1:43:09 PM (GMT-6)

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