Just to let you know I got fired from my job a few months ago from having a episode at work. I had a few in the past few years but we had a new HR & Manager and they said it was to much liability for them. I was a computer IT tech. I got a lawyer after this and nothing happened. They told me California where I live is pretty good to the employers and not the employees. He said we can sue them but most likely it would just be a fine to them and not a thing for me.
I did apply for SSI Disability because I cant drive or work. This was a few months ago and havent heard anything yet. I hope it goes ok.
I did take Dilantin a while back and it didnt help me at all. But everyone is diferent. They still are not sure if its 100% seizures, heart issues, or anxiety problems. The only thing I took so far that helps a little is Ativan a few times a day. I have taken Tegretol, Topomax, and a few others and none seemed to help alot.
Good Luck to you,FEN
Yeah it is SSI here in USA for disability, they take care of that. it took them 4 months to decide im not unhealthy enough to NOT work. Its not that I dont want to at all. I just lost my license and got fired from work. My job told me its to much liability to have me there. All I was is an IT tech, and do computer & Network stuff for the company. I went to two lawyers after this and they told me in California (Where I live) the laws are stronger for the company than the employee. So basicaly I am screwed. But I watch the news here in California and see they give SSI to BUMS, CHILD MOLESTORS, and free medical care to other people like this. But I've been working for over 20 years and have had this problem for a long time and I do qualify for SSI due to the amount of work I have done. But they dont think I am a sick enough person, so I guess I will comit crimes or something to feel like I fit in their screwed up society. Im sorry for sounding that way but it makes me mad when I have a honest condition and they dont care at all in USA. But USA says their a rich and powerfull country. LOLOLOL
And by the way I was on Dilantin for a long time and all it did was swell my gums a little. Dentists would know right off hand that I was on Dilatin when I was seen.
I appealed the SSI decision and will wait till I can write back to them. 1st I will tell them to GET ME A JOB being they are so dang smart. And being im so healthy they say I should be able to drive and do pretty much anything I want, at least I assume.
Funny part about my work is - When I have a seizure it lasts for a short time and I do have a arua before. I dont smoke or take breaks so I told the management that me having a seizure once a week is less time than the smokers or LONG break takers use up. And they didnt want to hear it at all. Oh well, my luck.
But if I had a 2nd chance I wish I was born in another country and not this Mickey Mouse of a country they call USA.
I definately can relate, it's too bad that there is a "STIGMA" or certain "STEREOTYPING" that goes with this condition.
When I was on Dilantin the only issue I had was the gums, so not to bad. But it didnt control the seizures to well. I was also on at times. Tegretol, Topomax, Neuorontin, and a few others. And the funny part is now Im taking Ativan which does help for seizures and that doesnt control it 100% but at least 80%. I have not yet found a medicine that will give me 100% control. I pray and wish that one day I will.
But to RanMan,
I totally understand the word Seizure/Epilepsy freaks out people. I dont know why that here in USA they take your license away for seizures but NOT for heart attacks, strokes, and many other ailments. I lost my license a total of 4 times and got it back those times, but I NEVER had a accident due to a seizure. In studies there are more accidents due to cell phone talking, Heart attacks, Strokes, and even smoking. Pretty funny if you ask me.
But I will never understand why people freak out at the "Hearing of the word Seizure/Epilepsy" when trying to get a job. I have a degree in computers and can work better than the next man but Im cursed I guess. Maybe one day I will get good luck. I was lucky once and had a job for 9 years at one place. When I had a episode there they acted like they cared and took good care of me and really made sure I was fine before I started working again. That was the only job I had like that. To bad they are not around anymore. I was a Computer Admin there.
Good luck all and have a great day,Robert (FEN)