Your story reads like mine. I'm 35 and had my first GM at 1. I had a partial right temp lobectomy in 2001 and then a complete RTL in 2002. I'm still not controlled by any means but going from about 5 a day to 2 - 5 a week is to me some level of success.
I wasn't ever well versed when it came to E until I had my surgery. Now I feel like I know way more than I'd ever imagined.
Best of luck on your sz's,