5 yr old daughter with comple-partial

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New Member

Date Joined Aug 2006
Total Posts : 3
   Posted 8/27/2006 6:52 PM (GMT -7)   
Hello all - new to this forum
Katelyn is my 5yr old daughter and has recently been diagnosed with somplex partial seizures.  She only has an episode when she is falling asleep and asleep.  The seizures last 5-8 seconds.  She may sit up, clench and interlock her hands together, blink repeatedly, and tense up.  She may have 3 or 4 clusters together than falls back asleep.  during her sleep she may have 20 to 25 of these.  She has been started on depakote sprinkles for four days now and has seen very little improvement.
has anyone else experienced similar episodes as these?
What are your experiences with Depakote?  Does it take 1-2 weeks to see an effect?
Thank you to everyone and god bless.
A broken-hearted Dad

Regular Member

Date Joined Nov 2004
Total Posts : 167
   Posted 9/27/2006 2:30 PM (GMT -7)   
Seizure types differ from one person to the next.  Just like finger prints.  A complex partial for one person might not look the same for another.  I personally cannot take Depakote at all!  But, again different people respond differently to different meds.  There is what they call a ramp up period where they med level has to build up in your system.  It can take up to a week or so.  It is not unusual for it to take that long.  If you have any questions or concerns, never never never be afraid to call your neuro.  That's what they're there for.  Good luck and I hope this helps.  Remember we are always here to help and support and just plain listen if you need to vent.

No one left behind!

New Member

Date Joined Nov 2005
Total Posts : 12
   Posted 11/28/2006 5:31 PM (GMT -7)   

Hi, I read your post & thought I'd reply I also have a 5 year old daughter with epilepsy. she has generalized seizures. She also is on Depakote 1500mgs a day she was having 100s of seizures daily & it did'nt seem to be helping then all of a sudden it kicked in she is now down to an average of 2 a month (PRAISE GOD!!!) it took us about 6 months to get her meds where they needed to be. but, I dont know about your daughter but mine well lets just say she cant stand to be around her self! She is so hyper on it. But I would much rather see her climbing the walls then laying on the floor! Anyways hang in there & if you need to chat with someone who can understand drop me a line I'd love to chat with you! Hang in there & Put in the GREAT Physicians(GOD) hands!Jolene


New Member

Date Joined Oct 2006
Total Posts : 5
   Posted 11/30/2006 5:27 PM (GMT -7)   
when my daughter started on depakote it also seemed like it did not work. give it some time you should see some improvement.

New Member

Date Joined Aug 2006
Total Posts : 3
   Posted 12/6/2006 8:13 PM (GMT -7)   

Thanks for the replies.  Im glad to hear your daughter is under control.  Its been a crazy ride for us.  Katelyn was on Depakote, became toxic, still was not able to control her seizures.  Our neurologist added Keppra and still unable to control.  We took her to see Dr Orrin Devinsky from NYU.  She was started on trileptal and that worked like magic but then she developed a bad rash and had to be taken off of it.  We admitted her back to the hospital where they tried tegretol which worked but she was allergic to it again.  Our doc tried Lyrica and she was doing well.  We were discharged from the hospital and the combination of lyrica, keppra and depakote seemed to be working.  Our doc wanted to titrate her off the depakote and when we did she went right back to how she was in August, an episode every hour throughout the day.  Doc put her back on Depakote and scheduled an increase of her lyrica over a month.  After 2 weeks of no success we started Zonegran today.  So now she is on 4 meds (decreasing lyrica & inc zonegran). 

Kids just amaze me of how resilient they are.  My fingers are crossed........

thanks for the nice email. I would love to chat.

Thanks all and god bless

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 12/8/2006 6:36 AM (GMT -7)   
Hey there... wow, does sound like quite a ride... hang in there and let us know how everything goes.. big hugs for your little girl... Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

New Member

Date Joined Nov 2005
Total Posts : 12
   Posted 12/14/2006 9:32 PM (GMT -7)   
I'm praying for you & your little one I know what your going through! This has been the hardest thing I've ever been through! Just take it one day at a time & be patient they will find the right meds & dosage for her it will just take time (the longest wait of your life!) . If you'd like to email me just click on the little icon to the left anytime! thoughts & Prayers, Jolene
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