Thanks for the replies. Im glad to hear your daughter is under control. Its been a crazy ride for us. Katelyn was on Depakote, became toxic, still was not able to control her seizures. Our neurologist added Keppra and still unable to control. We took her to see Dr Orrin Devinsky from NYU. She was started on trileptal and that worked like magic but then she developed a bad rash and had to be taken off of it. We admitted her back to the hospital where they tried tegretol which worked but she was allergic to it again. Our doc tried Lyrica and she was doing well. We were discharged from the hospital and the combination of lyrica, keppra and depakote seemed to be working. Our doc wanted to titrate her off the depakote and when we did she went right back to how she was in August, an episode every hour throughout the day. Doc put her back on Depakote and scheduled an increase of her lyrica over a month. After 2 weeks of no success we started Zonegran today. So now she is on 4 meds (decreasing lyrica & inc zonegran).
Kids just amaze me of how resilient they are. My fingers are crossed........
thanks for the nice email. I would love to chat.
Thanks all and god bless