I've gone twice for monitoring. The second time I wasn't expecting it, it just happened b/c I'd had about
three days of non-stop seizing and they couldn't figure out why. It was soooo incredibly boring b/c I didn't have a chance to bring anything to do. The first time I had advance time to plan. I brought magazines, and brain teaser puzzles, word finds, my cd player, some different small craft projects, etc. I'm usually really hyper, so sitting in bed was really hard, but I'd get up in the morning and start doing stretches and stomache crunches and stuff. I brought some of my own food too, so it kind of felt like I was on vacation, except the whole stuck in bed and the nurse patrol. There's a video camera across from your bed, and a microphone behind your head, but don't feel self-concious when you're talking or singing along to music or anything. The only time they really listen or watch anything is when you or a nurse presses a little button that marks the video feed for when you felt an aura or had a seizure. A lot of times they'll have you do psychological testing too. It doesn't mean they think you're nuts, they're just looking to see if anything's going on in your EEG while your brain's focused on certain things, and to see if stress factors are realated.
Any time you stay in the hospital, it's really scary to think about
, but EEG monitoring is painless, and simple. Sometimes your head itches like crazy from the glue they use, but that's about
the worst of it. The best part is, it helps the docs figure out what's going on better, so when you leave, you have some answers. Sometimes it will take awhile for them to put together all the info, and they'll send it to your neuro, who will explain it to you. Some stuff you'll know before you leave though.
It's not too bad of an experience - just different.
"For I know the plans I have for you", says the Lord. "Plans to prosper you and not to harm you. Plans to give you Hope & a Future."