What's a mom to do

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Beth B. in TN
Regular Member

Date Joined Oct 2005
Total Posts : 83
   Posted 9/5/2006 7:00 PM (GMT -7)   
Kimmy's having more seizure since back in school. They were "short" and the doctor was taking her off zonegran and starting lamictal. She's also on trileptal. So this week she started one lamictal at night and will keep the zonegran up until on the lamictal in the a.m. for a week then start weening off it. Well, she is having her first period since starting back to school. So...today she has a short seizure and says she feels fine and went back to class. I got a call from the nurse...so I stop by with lunch (that's my cool mom way of checking on her, take her a special lunch and her friends a treat of some kind)...So, she looked good (not "drunk" or glazed eyes). but...her pupils were tiny even though we went outside and it was overcast and really dark. I compared her eyes with everyone else's and they were tiny. Anyway I asked her how she was feeling (I know she's tired of that, but I'm the momma person). She said she felt fine and she was staying in school just to chill....SO,.....I left within the hour I get a call....she's eigght minutes into a seizure and they gave diastat at 5 and she was still in. Anywho they had to call 911 because they gave the diastat and that's the doctor's orders. She came out right at 10 minutes they said...
So all that long story to say I feel like crap. I've seen her eyes tiny like that before and in the past she had hard seizures after. but, I assumed that it was because of the one not a signal for the next. She refuses to leave school after a short one afraid she'll miss something (she's no longer on ADD meds and worried about her schooling). So...I'm trying to chill and let her be as normal as possible...but.....I'm momma. The doctor wasn't freaking out, she just said to continue her transition. So...I just can't sleep, she's sleeping off her diastat. Just need someone to tell me to chill or what. I feel really stupid and helpless. Please pray for peace from God and right choices for Kimmy and I. Thanks for letting me ramble on.
Beth B. in TN
Mom to Kimmy (16) with complex partials and simples.

Beth B. in TN
Regular Member

Date Joined Oct 2005
Total Posts : 83
   Posted 9/6/2006 7:41 AM (GMT -7)   
Thanks Mandi Ann, you're a dear person. Always know the right thing to say.
Huggs to you from me and Kimmy!
Beth B. in TN

Regular Member

Date Joined Aug 2006
Total Posts : 65
   Posted 9/11/2006 10:25 AM (GMT -7)   
I think with kids it's always the hardest. I often wonder how my parents (or now just my dad) cope with what goes on with me.
You sound like an incredible Mom, Beth. Switching meds is always a challenge; I'm switching mine for the fourth time this mont, but fortunately I don't have the added trial of a school load.

Keep going strong, girl, you are doing awesome! I know how frustating it is to have seizures and be going to school. I was a senior before one of my teachers made me go home. Too stubborn for my own good. But I did well, and here I am, so I guessed it worked. I'm sorry about the med switches, hon, that's an experience I would never wich on anyone. Hang in there!

I will definately be praying God gives you both peace, and that this is resolved soon.
~Heidi Hope~
"For I know the plans I have for you", says the Lord.  "Plans to prosper you and not to harm you.  Plans to give you Hope & a Future."
Jeremiah 29:11

Beth B. in TN
Regular Member

Date Joined Oct 2005
Total Posts : 83
   Posted 9/11/2006 1:10 PM (GMT -7)   
Thanks everyone, just needed someone who understands.
Kimmy had a great weekend, we went with our "sunday School" sommunity group to a state park where there was a craft fair. We stayed all weekend long. Kimmy went to bed early like she should, without me having to give her the mommy look. Everyone understands. I realized a little too late I should have taken her a pair of ear plugs. Live and learn. Anywho....I think the lamictal is kicking in no seizures all weekend or today.  She had a great day.
She says thanks for all the encouragement. Everyday seems like a mountain while she's going through a med change. I keep telling her you guys have done great. It really is encouraging for her to read what you've accomplished. You guys are great, perservering and brave. I am learning just how great you are and Kimmy is really a great girl too.
Thanks again for everything. Hope you are all having a great week.
Beth B. in TN
Imagine there were no hypothetical situations.

coffee 'n cigs
Regular Member

Date Joined Jan 2006
Total Posts : 69
   Posted 9/11/2006 8:51 PM (GMT -7)   
Best wishes to you and Kimmy, Beth. I just wanted to tell you that my pupils are always constricted before I have a seizure. Maybe for 30 mins. If I think I may be having an aura, I check my eyes in the mirror.

Regular Member

Date Joined Mar 2006
Total Posts : 51
   Posted 9/12/2006 6:04 AM (GMT -7)   
Your not stupid and helpless, you are a great mom. And you can ramble on as much as you like. We are here for you. I know whats it's like to go thu school with seizures. I had a nurse that was like a mom to me. She was there when I had my seizures in school. I hope she has the same results with her nurse, as I did. Best wishes to you and Kimmy. I know you are a great mom, just hang in there and be there for her and I know you will be. A friend

Had My Brain surgery, and I was so scared, but the doctors made me feel good and and I did. They kidded with me before the surgery and before I knew it I was in recovery Thanks for helping me. Mine is on the  left temporal lobe. They say it is deep it my brain.

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