Hi, This would be worrying for you not knowing what the future holds for your daughter, however, it will help her cope,if you can be strong for her. The EEG is not a real big deal, the idea is to see if they can induce a turn and the eeg will show a different pattern on the test . Even if it doesnt induce a turn , the operator will ask her to do breathing exercises ,open/closing eyes.
All this will assist the neurologist in reading the test and seeing what area of the brain, the epilepsy is coming from. The mri scan will give a clearer result as to where the epilepsy is. It may be possible that medication may control it for her, however , after trying many medications your neurologist "may" suggest thinking about surgery to remove it, but only surgery if it safe to do so,a lot more testing would be needed for this.
You are facing a lot , but with time , when you start getting test results you will have a better understanding of your daughters situation. When you see your neurologist dont be scared to ask questions ,regardless of how irrelavant you think your question is, your specialist is there to help you. If you feel he/she is not taking a genuine interest in your daughters case, ask your local epilepsy association to reccomend a good nuerologist for you.
I had epilepsy for 44 years, I am epilepsy free since surgery 10 months ago.
Good Luck Aussie2006