Thank you for all the responses. I can relate most to Set74 and littlesisser8. We all have very common symptoms with the deja vu, strange smells, or tastes, feeling of foreboding or fear.
They are driving me crazy right now. I had to stop the taper of my frisium because the seizures were getting too frequent. I'm on 30mg of it now and I'm having seizures every day. They get really bad about 10 days before my period starts, so my neuro knows it's hormonal in nature too.
I'm scheduled to go in for an EEG/video monitoring session sometime this year. I'm on a wait list, so I don't know exactly when it will happen. I"m just glad that they are taking me seriously and trying to determine exactly where the seizures are originating etc. All of me EEG's come back normal. Go figure eh!
I did have a seizure a couple of weeks ago in front of my mom. She said that I put my hand over my mouth, stared up at the ceiling and swallowed a lot. I didn't know I was doing that, but I am always able to maintain complete awareness and continue conversations when they're happening. So who knows what they are all about. All I know is that they freak me out! I haven't had one while driving, which is a good thing.
Thanks again for everyone's insight and experiences on their seizures. I appreciate it!
I thought I'd also note that having conversations will trigger a seizure, and they happen usually between 5 and 10pm! I never have them in the morning.
"Thank you God for the storms that blow me right into your arms!"
Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Acidophilus
Post Edited (ginny) : 2/24/2007 9:09:48 PM (GMT-7)