college girl confused about stuff other then bookwork

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New Member

Date Joined Jan 2007
Total Posts : 17
   Posted 1/27/2007 7:06 PM (GMT -7)   
Hey eveyone,
This is my first post so I'll tell you a little bit about my history. My first seizure was christmas day 2005. If I have one seizure I usually have another one shortly after. I had another set os seizures about a week after that and was diagonised with epilepsy.  Most of my seizures are Grand Mals. I have little or no warning before they come. At first I would get pretty big twitches before they came but now I might get no twitches or they are sometimes just little ones. I also have seizures where it looks like I am spacing out but they are seizures and I am able to go on with life as they did not happen. After the Grand Mals I am completly exhasted and just need and want to sleep a lot. Most of the time I have been in pretty safe places when I have had my seizures. I have about 13 Grand Mal seizures since I had my first ones. This past fall is when I had a lot of them. I had the 2 on Christmas and then 2 about a week after them. But then I did not have any more until I was home again in May. (I am in College right now in a different state then my parents) Then I had 2 when I was on a mission trip in South Africa that was probbley late June. Then I had the rest of my Grand Mals in the fall. So my seizures have just been getting worse. This fall I was actually not able to finnish the fall semester at my school they kind of forced me to come home. But anyways while I was home my neurologist changed the doses of my meds and had mw stop taking one but it was for something other then my epilepsy. While I was at home I did not have any Grand Mal sezures. Also I have not had any mote Grand Mal's since being back at school which is really good! But I still am having the twitchs and times when I "space out". I usually get at least 3 of the "space out" ones a week. Then I get the twitches about once a day or every other day. I have meds I can take if I have one of the twitches or space out episodes.(clonazepam .5 mg) last night I was playing some games with my friends and I thought that everything went fine. Then this morning one of my room mates told me that my face my twitching some while we were playing the games. She did not tell me then beacuse she did not whant to make a big deal about it. Which is how I want it and we talked a little about having a signal or something if I have another one in a goog setting. So this morning I took 1 of my clonazepam pills beacuse I did not feel right even before my room mate told me what happened last night. My doctor told me to take one if I have a twitch or "space out". After I took the pill I walked/jogged about 2 miles. Then when I got back to my room my blood suger was 137! Which is a lot higher then it is usually. Do any of you know if clonazepam can make blood suger high? Also I have noticed that sometimes when I take clonazepam it makes me really sleepy and other times it does not. Does that happen to anyone else? Also I am not who to tell what that is around me. People know that I have epilepsy beacuse I want them to know and I had a couple of sezures in between classes. But I do not know who to tell if I have a twitch or one of my "space out" things. I do not want to worry my room mates and friends. Also student development at my school does not want me to worry other people or scare them. They do not want me to interfere with there education. So I feel like I am stuck. I have talked to my mom a little about this. But she also does not want me to worry other people. I wish I had someone that I could talk to when these happen that will not judge me or worry. Just someone that is in the loop just in case something big was to happen like another Grand Mal. I have started to keep a little book to write down when things happen. But like last night I do not always know when I have twitches. What would you guys do in this situation or what did you do? Sorry if this got a little long.
Also I might go to a epilepsy center after this semester of school if things keep on happening and since both of my neurologists (one at each home) have told me about them. Has anyone been to one of these? What do they do there? What was your experence with them? I have done a little looking into them but I was unable to find a lot of info on them.
So for now I am just focusing on God first beacuse he is the greatest thing in life and will always be. Then comes figureing out my seizures and doing school at the same time. Then having fun with my friends beacuse they are great and life can't be all work. tongue

New Member

Date Joined Jan 2007
Total Posts : 1
   Posted 1/27/2007 10:06 PM (GMT -7)   
Dear Turtlegirl, I also have epilepsy and have had since I was 13. I am now 59 years old, have a wonderful and supportive husband of 47 years, two wonderful daughters (both nurses)and one son and 9 grandchildren. I have worked the same full time job for the last 29 years. I do everything I want to do and have always been determined to not allow epilepsy to control me--I control it! I guess when I read your letter it just made me want to write you a letter of encouragement. I'm sure you probably know this but make sure you get plenty of rest and take your medication daily and on time. I have found when I don't take care of my body I am more at risk of having a grand mal seizure. The only pattern I have is I have always had my seizures within a hour after I get up in the morming so I make sure I get up a little earlier and take my meds before leaving the house. I have had quite a few bumps and bruses in the past 46 years but my family and friends are of great support. Trust in God and always give HIM the glory. HE made us SPECIAL for a purpose and that it is to be a BEACON for others. I hope this has helped you and encouraged you in some way. GOD BLESS YOU

New Member

Date Joined Mar 2007
Total Posts : 7
   Posted 3/11/2007 10:04 AM (GMT -7)   
turtle girl I'm Missy and im 17 first of all i want to congratulate you on your courage I know what it is like i suffer from three types of seizures and take depalote and zonegram when i first got diagnosed with epilepsy when i was 13 or 14 i had up to 18 absance seizures a day  it just takes time to get the combination right i went to a epilepsy foundation and they were the oneswho got the combo correct i also know what it is like for a school to say sorry got to go I ended up getting homeschooled because my seizures were uncontrolable now i am back in school and my seizures are now under control  
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