i feel so alone...

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New Member

Date Joined Jun 2007
Total Posts : 1
   Posted 6/24/2007 12:42 AM (GMT -7)   
hi everyone. i have epilepsy, i've had to go through it all by myself. i took keppra for two years and im off it now. the neuro says that i shouldnt have any seizures anymore so thats great then, i guess. i read an article on this site a while ago that talked about the needs of people with epilepsy. i completely agreed with it and i realized my needs arent being fulfilled. i didnt have anyone telling me they love me or that they are there for me. everyone thinks i feel ok when im actually a real mess inside. i dont know why im posting this all of this, i dont think anyone will care but i am going to anyways because its killing me.
for my birthday i was promised a ''perfect'' day. that it would be a great day. it really wasnt. no one remembered. i was upset and angry. the day after i was really upset and ended up punching myself a couple times, leaving myself a couple bruises. should i forgive and forget? what do you people think? it really got me upset and made me feel drained.
parents.. if your child has epilepsy, know that their needs are a little bit more different than a normal childs. let them know you love them and that you are there for them. talk to them, ask them if they feel ok, tell them you care. dont let them feel lonely. its hard living like that. i dont know if i can keep going on like this.
if you read all of this, thanks for listening. i know its not directly related to epilepsy but i just needed to get this off my chest. if you reply, please be nice. thanks. bye

Another Day
Veteran Member

Date Joined Mar 2007
Total Posts : 1055
   Posted 6/24/2007 2:41 PM (GMT -7)   
I hate to hear you feeling so sad.  Believe it or not, you can probably help someone else on this forum.  I'm not sure what your age is, I'm thinking you are young.  I am 56 and was just diagnosed with epilepsy last summer and still trying to get them under control.  It sounds like you may have your seizures under control but may be suffering from depression, which I think probably goes along with epilepsy, I'm not sure.  I had depression first, but have had it pretty much under control for a long time.  It does rear its ugly head from time to time, especially when I'm having a tough time with the epilepsy.
I think you've come to the right place with this forum.  There are a lot of good people here who help each other a lot.  Just keep checking back in.  Our moderator of this forum, Darren, is a young person also.  He is extremely helpful.  We kind of get to be like a family here.
Take care!

Veteran Member

Date Joined Jan 2006
Total Posts : 2408
   Posted 6/24/2007 10:50 PM (GMT -7)   
Hi there and Welcome to HealingWell!
Im really sorry to hear about what happened on your birthday. Is it too late to send a card? lol Like Carla, I get the impression that you are a young person. There are less young people on this forum and their input is just as important so you probably can help someone. Even if it is relating to someone who has just been diagnosed. I am 22 and consider myself young!
I hope you find the help and support you need here. Its never too far away!
Warmest Wishes
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
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New Member

Date Joined Nov 2007
Total Posts : 1
   Posted 11/7/2007 6:25 PM (GMT -7)   
I understand 100% how you feel about going through it and dealing with it on your own. im not sure how old you are, but im 24 and have been dealing w/ trying to accept the fact that I even have them because it just started when I was 16. but I Know when I was down, and depressed and what not about it, I got put on depression medicine, because all I wanted was someone to understand how I felt, and try to explain to me why I was feeling the way I was and talk to me about it, but instead, they just added on more pills to take and so I just went on for years, holding it all in until one day, I couldnt deal with it anymore, and just went off and went off my meds and everything and ended up in the hospital, and then someone finally listened to me.

Regular Member

Date Joined Oct 2007
Total Posts : 121
   Posted 11/9/2007 11:20 AM (GMT -7)   
Boywithadream, I am 37 and have had epilepsy since I was eight and it was no picnic. I was talking w/ some ladies who have struggled w/ self-esteem problms most of their life and something rang true. For one my dad tried his hardest to take care of my needs but he struggled with depression himself. My mom left us when I was seven so I was raised by my dad. With the ladies I was talking with last nite...and it isn't saying it is not right cuz it isn't...sometimes parents don't know how to help their kids, especially if they don't have very good self-esteem and didn't feel loved the way they should have. Thanx for stopping by and come again. Peace Out! Kota

"Be who you are for who else are you going to be?"
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