Okay, here's the scoop....
I was put on Lamictal on June 12th when I was in the seizure monitoring unit. I went home and had 8 great days. I felt fantastic on the stuff. Then during the night of the 19th, I got the worst fever ever. I woke up in the morning with a fever, and a really bad rash all over my body. I had dizziness, weakness in my legs, I could hardly move around. I was super sick. So my neuro told me to stop the Lamictal immediately and monitor the fever and rash. Well, it only got worse. On the 22nd, my hubby took me to emergency. They immediately put me on a high dose steroid via I.V., and was considering putting me into ICU!! That's how sick I was. My fever was over 104.
So I spent one week in the hospital getting blood tests done, and letting this drug out of my system. You guys, I had every single possible adverse side effect that this drug could deliver. My neuro has never seen a reaction like mine, ever. I am super duper allergic to this drug!
I'm home now. Have been for about 5 days. My recovery has been nothing less than stellar! I am almost feeling back to my old self. I spent so much time in bed at the hospital that my poor little legs had no strength in them at all. I'm now feeling stir crazy and ready to get back to life!
Here's an interesting thing.... I'm on my old seizure med (clobazam) still, and before the Lamictal, I was getting 2 or 3 simple partials every day. Well, I haven't had a seizure now for 3 weeks! What is up with that! Another mystery that my neurologist can't explain. I hope it lasts.
Just wanted to fill you in on my escapades over the last 3 weeks. It's been a rollarcoaster that I'm very glad to be getting off of!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in, to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus