We talked to the neuro but...

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New Member

Date Joined Dec 2007
Total Posts : 6
   Posted 12/13/2007 3:19 PM (GMT -7)   
Things here are still unstable. Gavin is still having episodes in his sleep...4-5 a day. Hopefully with tomorrow's increase in meds., things will improve. The Dr. said we'll talk next week about how things are going. A change in meds means another trip to the hospital, so we're praying this works.
The neuro basically said that she thinks that it's good that he's only having episodes in his sleep and that she is hopeful that the meds will work.
Topomax has to be raised in small increments....I really hope it works.
Thanks for all of your feedback so far.  It really helps.

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 12/13/2007 5:58 PM (GMT -7)   


Have you considered having Gavin tested for SLEEP APNEA.(EEG done while he sleeps)

There could be some kind of obstruction in his airway causing a lack of oxygen to the brain.

IE: could be brought on by several ways.

IE: If he sleeps on his back, it could cause the airway to close up and chronic snoring could be an indicator.

I've had epilepsy for 28 years and this is one of my experiences.

IE: I was dx'd with Chronic Obstructive Sleep Apnea in May 2007. 
After my sleep disorders test the Dr. showed me the EEG from one night, I would stop breathing up to 50 times/hour and had 3 seizures and that I was waking up "post ictal" (moody and spaced out)
I have recently purchased a CPAP machine which provides constant air pressure and have noticed a vast improvement.
No more snoring (the whole family sleeps better now), more energy when I wake up, better REM sleep, improved memory (less short term memory loss), and most of all ~ NO MORE NIGHT SEIZURES.
Now maybe my Neurologist can reduce my meds.
I'm surprised that finally after 28 years I finally get an answer.
All this came about as a result of my wife's complaint to her Dr. about my snoring.


Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.

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