Thinking maybe this much pain isn't normal

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Veteran Member

Date Joined Mar 2006
Total Posts : 1191
   Posted 7/20/2008 9:48 AM (GMT -6)   
Hello--I am new to this board.  I have been a member of HW for a long time, on the Bipolar forum.
I will be making an appointment with my gp soon to talk about my concerns, but I thought I would post what I'm experiencing here to read what all of you have to say.
I have a very severe case of TMJ in both of my jaw joints.  The right side I no longer have the disk at all, and the left side is in bad shape as well.  It's been a long time since I've had any updated scans, but I do have a myofacial surgeon who I touched base with last week.  The main problem with my TMJ is stress.  I don't grind at all, but I clench so hard that I cracked the first splint I ever had and the second one has bite grooves all around it.  My surgeon has since told me to stop wearing it all together.  The stress and the non-stop clenching creates awful spasms that are more pain than I can really take.  Now, TMJ of course leads to shoulder, back and neck pain.  But the aching I have all through my back etc.  I'm wondering if it's something like fibro.  I don't exercise, so I've always thought that b/c I'm not active, don't stretch...this is the reason I'm so stiff and sore.  I just read something about fibro that really got my attention--about the pain first thing in the morning.  I can relate to that definitely.
I've really thought all this time that it's all b/c I don't exercise.  I do some walking everyday...I walk at my job, take our dog for short walks...But I'm just in a lot of pain.
Any thoughts would be much appreciated.  Something else I would be concerned about is that I would not want any medication b/c of the meds I'm on for my bipolar illness.  I'm not a big fan of pills.  Anyway, thanks for reading.
Bipolar II, Anxiety/Panic Disorder
Clonazepam .5mg as needed, Trazodone 50mg/day & Lamictal 250 mg/day

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/20/2008 10:09 AM (GMT -6)   
Hi Mogli and welcome to the fibro forum. Have you checked out the fibro 101 thread, second thread on the page. There is a list of symptoms in it. I am a clincher too but not to the degree you are. I have some jaw pain sometimes but I wouldn't call it TMJ. I attribute it to the uptight person I am. I don't think my body knows what relax means. I have the neck, shoulder and back pain.
I hope your GP believes in fibro and can give you some answers. Print out a list of the symptoms and go over them with your doc if there is a lot of them that apply to you.
luv and hugs
Forum Moderator Fibromyalgia
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Forum Moderator

Date Joined Apr 2005
Total Posts : 17895
   Posted 7/20/2008 10:37 AM (GMT -6)   
Hi, Mogli, and welcome!  We all are pretty stiff in the morning and any time we sit too long.  With fibro it is important to move or the muscles stiffen right up on you.
Check out the Fibro 101 thread...the second thread on the first page of the forum.  There are links to some good information.  One, called Great Stretching Exercises, really helps and they are done sitting down.  So, if you have a desk job, these are especially helpful.  There is also a list of symptoms of fibro in the Fibro 101 thread.  You may "see" yourself there.
I take a supplement of malic acid and magnesium that has helped me a lot.  I will bump up the thread about it so you can read up on it.  Be sure to check it out with your doctor and pharmacist first.  My doctor thought I was wasting my time and money but said it wouldn't hurt me so I tried it and I am so glad I did.  I also take ibuprofen and Tylenol to help control the pain.  This is all I take as far as medication.
Try hot showers, rice bags, light massage therapy, etc.  These seem to help.  Moist heat is very helpful.
Let us know how your doctor's appointment goes!  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Feb 2008
Total Posts : 378
   Posted 7/20/2008 12:27 PM (GMT -6)   
Sorry to hear you are having so much pain. I had severe TMJ in 2004
and went to the dentist for a bite splint. But then the pain spread all over my body after surgery in 2005. I was finally dx with Fibro last December, after
several trips to the ER for unexplained back, hip, leg, knee, neck, shoulder and chest pains. So my Fibro started with the TMJ. It was a relief to find out what it was, so make sure you tell the Dr everything. Hope you feel better
anxiety/panic attacks...osteoporosis....Fibro

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