I got the run around from regular docs. I didn't know what was wrong with me at the time, and so when the doctors said it must be in my head, I guess I probably believed them for a while. I was having tmj problems, knee problems, shoulder, rls, but I would only go see my doctor when things were really bad, and then only mentioned the one problem that was flaring at that particular moment, I had no idea all my symptoms were related.
eventually I started using google, typing in my symptoms, and they all went right to fibromyalgia. some of the symptoms I have had my whole life, so I was amazed to find out about
fibro, and how all those things wrong with me were also wrong with other people too. then the day after my discovery online, my boss came to me. her best friend had fibro, and they were talking about
all my symptoms, and her friend said it sounded like fibro. hearing it from them convinced me to make an appointment with the friends rheumy. which I did. it was like serendipity though, the way I figured it out and my boss figured it out within 24 hours of each other.
the rheumy did some tests to rule out anything else, and pretty much agreed with my dx. once all the tests came back as being negative for anything else, he made it official. I had been suffering with the symptoms for years by the time I got diagnosed. you will hear that a lot around here, most of us went undiagnosed for years. were told it was all in our heads.
Post Edited (kellieak) : 8/5/2008 3:51:08 PM (GMT-6)