Post Edited By Moderator (Jeannie143) : 8/7/2008 7:47:24 AM (GMT-6)
Post Edited (Jeannie143) : 8/7/2008 8:10:26 AM (GMT-6)
Family is important and I know what it feels like to let them down. My family has been affected by my illness. I worry terribly about my youngest daughter, she is only 10 and worries so much that I will die from this. I have had her doctor explain to her that Mom will be ok, she just hurts a lot. I know she understands what he is telling her but she still worries. We just returned from a four day trip to Illinois that has wore me out, she keeps holding me and stroking my back. She is an absolute sweetie, I hate what this is doing to her. On the positive side of this, I do believe that someday she will help others. Her speech therapist has agreeded with this, the child is so sensitive to the needs of others. My older children handle it better but get disappointed when I can't do something (I hate seeing the looks on their faces). I don't think there is much that any of us can do, we certainly can't get rid of this disorder. Just love our families and know that all will be ok. I do know what this can do to a marriage, we have problems that we just can't seem to resolve, a wall as you say, but I'm going to keep on trying. Hopefully he can accept who I am now, if not, then it wasn't meant to be.
Don't be to down about it, we all have those really bad days (or weeks, maybe months) but know that we are all here and care. We can all work together to find a new way of life, a good and positive new way of living with this disorder.
All the best!!
Marlee I agree. I still have a lot of guilt but I'm beginning to realize that all will be ok and my girls will be better people for having gone through this with me. Another positive thing that has come out of this is my girls are a little more independant, they still like me to do things for them but I've noticed that they are starting to do things for themselves. I think we are headed in the right direction .
Last night my daughter had a moment, she started in a high pitch voice of how come the house shuts down at ten and she is sick of how we arent like anyone else. It led to an argument because as I said to her she goes to her room at 10.00 has a telly, computerand stereo so its not like its shuts down. In the morn she came up to me and put her arms around me teary eyed and apologised.
I am so glad my posting has brought so many people out into the open to talk.