A thanks to replies for guilt with family and fibro.

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Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 8/7/2008 7:26 PM (GMT -7)   
:-)  A quick thanks to all replies as they were so loong and youse took the effort so thankyou.  I realise now that none of you can make arrangements in advance and neccesary stick to them.  And that some of you also have the relatives who denie and dont even try to understand, with me its likewise, to chelle with the young kids the games and crayons are something we all rmember as precious.
jeannie and maura I did copie it and have given copy to daughter and relatives.Marlee you are right, i have the gift to be able to speak to my daughter.  Sherrine I remember my last picnic, for xmas just the four of us, very short, but I congratulated myself that everything went right for once . I also cant eat before goiong out because of unpredictable bowels but I can work around that like you yourself said.  Kelly I can so relate, I have a stepmother who says it doesnt exist and I dont know how I can keep seeing her and my father because of it.  We have enough pressure and difficulties with visits. And to mama kity being new member you are right, I am new member also and after reading all the replies I feel like a part of the family now also.  Hope didnt miss anyone out in my replies there were so many things I wanted to say to you all but would of taken forever.
The photo copy will be a big help,    thankyou to everyone     have a good day.  love to all   from sue2z :-) :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41816
   Posted 8/8/2008 9:26 AM (GMT -7)   
Hi Sue,

I am so happy that you are finding answers here on the forum. The members here are so wonderful, aren't they? I am glad that you feel at home here and hope to see you posting more and more.

Fibromyalgia is a difficult disorder. I myself can't make arrangements and expect to complete the tasks at hand. I never know how I am going to feel from one moment to the next. One good thing did come out of that though, I quit worrying about the future. I have to take life one day at a time and that is the way it goes. So future worry is out of the question. That is a huge weight taken off of my shoulders. So there are some good things that do come out of this. I live my life from day to day and it is easier that way. I think that you can understand what I am saying. The absence of worry, really helps me live my life a lot better.

Good luck to you and I hope that you are haveing a wonderful day.

Hugs, Karen...
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/8/2008 10:00 AM (GMT -7)   
Your welcome Suez. This is a great forum that teaches by experience what we need to know to live a full life with fibro.
I use to have myself on a schedule and knew everyday what I would be doing and for how long and was a bit of a perfectionist, hehehe. Then came fibro and I did try for as long as I could to maintain the schedule but the fatigue got so bad it was impossible to do. Now I do what needs to be done worse when I have the energy to do it. There is no schedule and sure no perfectionism in my life. But I'm not sure that is a bad thing.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
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