Suez this is so hard for people to understand. I don't even understand it all myself and I live it everyday. After five years my DH has become very attentive and helpful. I have some family members that really want to understand it and some that have never asked a question about it. Some still ask me stupid questions, like are you better now??? Those are the ones that have not bothered to do any research on fibro and never will. All I can do is provide info to those that ask and educate them.
I was surprised over the weekend when we went to a family reunion for part of my DH's family, when he told everyone what my problem is, at the "oh my, your in a lot of pain then" from so many. What they didn't understand is it's not so much the pain for me as the fatigue.
My sons are grown and I sometimes think they are in denial. I really don't talk to them much about it unless they bring it up. I'm MOM the doer of all things, the one that plans all the family events and the one they grew up with as being able to keep up with three busy boys schedules and still have energy left over. That is the way they still see me for the most part. I think my youngest son that lives close understands it better since he sees what this has done to me more.
I know I was in denial when my dad had cancer until the last two days of his life when he really got bad. Young people don't want to think about their parents getting sick at an early age.
I think we all have our pity parties and hurt feelings over this. Last night I was in a lot of pain and one of my sisters called to have me e-mail a picture to her cause she is meeting with some old friends tonight. She was very excited and didn't ask how I felt or anything. She meant no harm and I know that, I e-mailed the picture to her. I guess from having been dxd for five years now and suffering for about 10 yrs I have become more understanding of others myself. I try to put myself in their shoes when I was healthy.
But you know we are always here for you and we do understand.
luv and hugs
Forum Moderator Fibromyalgia
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