Anyone else experience this along with Fibromyalgia?

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Regular Member

Date Joined Jun 2007
Total Posts : 56
   Posted 8/24/2008 9:29 PM (GMT -7)   
   I'm so tired but yet can't sleep. It dosn't seem to matter if I go to bed early or late, I usually lay there at least a couple of hours before I fall asleep. I feel exhausted around the middle of the day, but try not to take a nap because that makes bedtime even worse.
   Most nights I wake up at least once or twice to use the bathroom and I'm up by 8:00am & can't fall back to sleep. confused
   One more question. Do any of you with Fibro have to lay down a certain way? I have to lay on my stomach when I get in bed & lay very still for a few minutes before I can move because the muscles around my rib cage & back tighten up. After a few minutes, they will relax. Because of this, I'v put off having tests like a Pap test because I'm too embarrased that I can't immediately lay flat on my back.
   When I was first diagonised with Fibro and taking a 3 month series of epiderals for the pain, the doctor said I was the only patient he had seen that was already on their stomach when being wheeled into the treatment turn
   I'd love to hear back if anyone else experiences these same problems. Thanks   ~Sande~

Regular Member

Date Joined Nov 2007
Total Posts : 346
   Posted 8/25/2008 4:12 AM (GMT -7)   
Sandelee- this is the story of my life. I get an occaisional night where I fall asleep in under and hour, but most nights, I will be reading, or watching tv or something, and feel like I can't stay awake a minute I go to bed- only to lay there for a few hours tossing and turning....I always wake up atleast twice in the night...for some reason or another...and I also can't take naps. they make me feel all messed up when I wake up! I too feel exhausted in the middle of the day.

the one thing that I find that helps me with the sleep thing (which is sometimes easier said than done) is if I try to go to bed and wake up at the same time everyday, even if it means setting an alarm in the morning on my days off (boo!) also, If I exercise as soon as I wake up for about 20 min ( walk, jog, yoga- whatever I feel up to) It seems to give me a little more energy through out the day, and make it a little easier to get to bed at night.

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Date Joined Apr 2005
Total Posts : 17497
   Posted 8/25/2008 4:32 AM (GMT -7)   
Sandelee, welcome!  I'm so glad you joined us!  Yes, we all seem to have problems falling asleep.  I fall asleep with the television on.  I have one in my bedroom and I lay down to watch it.  I'm hearing impaired so I have to read closed caption, too.  By lying down, my eyes are half closed to begin with and I will drift off to sleep in about 15 minutes this way. 
I am up every 1 1/2 -2 hours all night long.  I'll be asleep and all of a sudden my eyes pop open!  So, since I'm awake, I run to the bathroom and then back to bed.  So, you definitely are not alone!
Be sure to check out the Fibro 101 thread.  It is the second thread at the top of the forum.  There are links to some good information about fibro.  If you have more questions, don't hesitate to ask.
I  hope you get a good night's rest tonight and I also hope to hear more from you soon!  Have a good day!

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/25/2008 5:45:35 AM (GMT-6)

MT Lady
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Date Joined Jul 2008
Total Posts : 969
   Posted 8/25/2008 6:08 AM (GMT -7)   
I too have problems falling asleep, and I take Ambien for sleep! There are times I will take a Flexeril two hours before bed and then feel so sleepy at bedtime, take an Ambien and as soon as I lie down that is it, I am up! I'm thinking about meditation, something to quiet my mind. I do, by the way, take a nap during the day. I just make sure it is early enough in the day not to disturb the night sleep, although I don't think it makes much of a difference. Yesterday was a no nap day, ran around a lot, and had a heck of a time falling asleep. I read somewhere that people with fibro have problems with their sleep circadium...what to do about it? Haven't a clue? I do exercise, at least most days when I can, but NO WAY can I do first thing in the morning..takes me forever just to get myself to a semi painless point to start working. O, the joys of fibro!!!

Fibromyalgia, Osteoarthritis, scoliosis, microdiskectomy C5/C6, bulging disks L3/L4, compressed nerve L5/S1, disc compression L5/S1, IBS, hypothyroidism (now FINALLY well controlled) Also angioplasty, and angiogram, high bp, well controlled, high chol, now normal, well controlled

Medications: Hydrocodone, triamterene, cyclobenziprine, lorazapam, Synthroid, Cytomel, atenolol, fluoxetine (in the process of weaning off of it), Niaspan, crestor, ambien, plavix and protonix.

Supplements: Probiotic pearls, Olive Leaf Extract 18%, cranberry tablets, calcium, vit b complex, evening primrose oil, CoQ10, omega fish oil, vit C, ribose, L- carnitine, mega dose of vitamin D, once weekly

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/25/2008 6:25 AM (GMT -7)   
Hi Sande and welcome to our family. I relax in the evenings and read or watch TV. Nothing stimulating. I take amitriptyline and xanax before I go to bed, that puts me out in about an hour. I watch or listen to TV when I go to bed to keep my mind from thinking about all of life's problems. I do sometimes wake up at 4:00 am, don't know why that is the magic time but I go back to sleep til around 7:00.
Have you tried taking a warm shower or bath before bedtime??? That relaxes me and if I use the shower massage it relaxes the muscles. about the only pain I deal with at night is neck and shoulders and getting those in comfy position. Sometimes the outsides of my hips hurt.
Perhaps you can talk to your doc about the problems you have laying on your back so they can help you get comfy for your PAP test. That is so important to have. I know I can't have my hairdresser wash my hair cause of my neck but that's not a life or death problem.
luv and hugs
Forum Moderator Fibromyalgia
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Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 8/25/2008 6:50 AM (GMT -7)   
I take the store brand of Tylenol PM several times a week for bedtime pain and to help me sleep. I also do breathing exercises and finally I relax my tongue. If you can relax your tongue so that it isn't pushing against your teeth or the roof of your mouth it will often bring on sleep. Your tongue is the strongest muscle in your body and by relaxing that you actually can help the rest of your muscles relax. It's worth a try, hope it works for you.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Regular Member

Date Joined Jun 2007
Total Posts : 56
   Posted 8/26/2008 7:59 PM (GMT -7)   
Thanks to all of you for your responses. I'v had two terrible nights in a row, went to bed about 1:00am, laid there untill around 4:30am, finally fell asleep & awake at 8:00am, been up ever since. I hope tonight is much better.
I'm trying to get ready for a rummage sale this weekend, no rest for the
That's interesting about the tongue, Jeannie, I'm going to try it. Great advise, Marlee. I do seem to take life's problems with me to bed.
Sherrine, my husband also has Crohns, has had 3 surgerys so far. Kmhayes, sounds like you get about the same amount of sleep I do, what a bummer!
Hoping we all get a good nights rest tonight......~Sande~

Sera Smiles
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Date Joined Nov 2006
Total Posts : 671
   Posted 8/27/2008 12:27 AM (GMT -7)   
I also have to lay down on my stomach to even hope to get to sleep. It was quite a long time before I could do that. In the past, laying on my stomach made my lower back scream. Now I have to put the pillows just right, 3 of them in different places. Also- get prepared to laff outloud- wait for it- I have to begin many nights [if I really want to get to sleep] laying upside down! LOL I start my night by laying with my head at the end of the bed and my feet at the top of the bed. I think it has something to do with fooling myself into thinking I'm just chillin. Eventually I move around, but I have to be uncovered by a sheet, I have to get coldish, and I have to feel as tho I can sleep. Reminds me of an old social worker joke- how many social workers does it take to change a light bulb? One, but it really has to want to change!
Peaceful sleep, everyone! [going to try my upside down sleep]
DX- FMS 2003; Hypertension; Depression; PTSD; IBS
RX- Ultram 100mg x 2/d; Toprol 100mg/d; Cymbalta 60mg/d; Buspar 5mg x 2/d;  Malic / Magn 1650/300 x 2/d; Claritin 10mg/d; Bendryl 50mg x 2/d;
B-Complex 1/d; Melatonin 5mg/night; Ginseng 500mg x 2/d
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"Its never too late to be who you might have been" George Eliot

Regular Member

Date Joined Jun 2007
Total Posts : 56
   Posted 8/27/2008 6:56 PM (GMT -7)   
   tongue Sera....Sorry, but I couldn't help but laugh at your letter. I pictured that in my mind. But, hey, whatever works, right? Seriously though, it's no fun when you can't get the proper rest you need & feel exhausted all the time. cry   ~sande~

Sera Smiles
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Date Joined Nov 2006
Total Posts : 671
   Posted 8/27/2008 9:26 PM (GMT -7)   
Hey, Ms Sands! I did try last night, but all that came of my upside down approach was a nice "rest". LOL I didn't ever really get to sleep, but on those nights I try and not get frustrated and mad, and just try and "rest". argh. Tonight I will try again. Tomorrow I have a couple of low impact classes at the gym and that sometimes helps me sleep better. Its time to ask the doc for another Ambien Rx.
Peace- amd happy sleep!
DX- FMS 2003; Hypertension; Depression; PTSD; IBS
RX- Ultram 100mg x 2/d; Toprol 100mg/d; Cymbalta 60mg/d; Buspar 5mg x 2/d;  Malic / Magn 1650/300 x 2/d; Claritin 10mg/d; Bendryl 50mg x 2/d;
B-Complex 1/d; Melatonin 5mg/night; Ginseng 500mg x 2/d
PRN- Flexeril 10mg; Hyoscine Butyl 2 mg
"Its never too late to be who you might have been" George Eliot

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 8/28/2008 3:23 AM (GMT -7)   
I read this thread around midnight last night. I try to practice good sleep hygiene techniques as directed at night, yet have a horrid night and felt compelled to write on the topic. I have a white noise generator (like a sound machine) which has a conuinuous hum, which drowns outside noise. I've burned through three units over the past ten years. I try to not do anything stimulating before bedtime, I have a light carbohydrate snack early, nothing heavy about one hour before bed, toast, and warm milk. I am at a complete loss. I awake two hours after I fall asleep and wake every two hours until morning. My bed becomes my enemy. I have a memory foam pad on my bed (my brother slept in my bed twice while visiting and he has back issues. he said it was the best sleep he'd ever had. ) My doctor prescribed up to 150 mg. of amyltriptilene at bedtime, enought to knock out a moose, still no sleep. he then addaed klonopin, which worked well for about a month and then stopped working. I have a lot of problems in my life right now but I lock those up in a beiefcase at night and leave them there till morning. I have black-out curtains in my room, avoid TV (although sometimes having the tv on helps me fall asleep), it always wakes me up a couple hours later, so it's not really a solution. I'm at a loss. Not being able to sleep with anyone in the room stole my marriage. It seemed unnatural for him to be banished to the  guest room. I know about the link to Fibro from sleep disordeer. My docs don't help, living in Canada, one doctor visit is six minutes long. Another issue, make another appointment. All we ever get dealt with is prescription renewal. I live a hundred miles from my doc, it's not possible to make a series ofappointments. I do however, after waiting 18 months have an appt. with a psychiatrist, hopefully he'll sign my disability paperwork. I have BiPolar disorder in addition to fibro.Not sleeping leaves me in a fog which lasts all day long. I forget things, seem to say the wromg things to people, upsetting them, never knowing what I'm doing wrong. It's no fun.

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 8/28/2008 7:11 AM (GMT -7)   
Hi Sandelee and welcome-

I'm not sure if the fibro causes me to wake up at night because I have been doing that for many years. I just got diagnosed this past spring. I'm able to fall back to sleep though and I have to sleep on my sides. So many have sleep problems and have offered some good advice, I hope you'll find something that helps! GamJill
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
Zoloft, Tylenol 4000 mg., Zanaflex

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 8/28/2008 3:52 PM (GMT -7)   
Sande, If you are not against the idea of taking a sleep med, you may want to take a look at the posts about xyrem. It is a medication for sleep and has been extremely helpful for me. Lisa

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 8/28/2008 5:38 PM (GMT -7)   
I find that for me when i go to sleep if i have it dark and just soft relaxing sounds ie nature cd's or my favorite music on low.. it helps to go asleep faster.. and i always use my ipod with earbuds that way i can focus on the music and it blocks out any outside noises.
I do wake up through night though ... i will usually get 2 hours sleep then up for 3 then back for two. it is very rare that i get a full nights sleep .... 
I also find that having a short nap 30 minutes at most around lunch times helps.. but never any longer....
I don't take any sleeping pills yet but thinking that i might have to soon
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