the pain clinic adventure

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Date Joined Jul 2008
Total Posts : 1495
   Posted 8/25/2008 9:10 PM (GMT -7)   
A couple of people had asked me to keep them up to date on the process of getting treatment.  I'm sure it is not the same for everyone, but in northern california with Kaiser, they send you to a pain clinic.
So I went to the orientation a couple of days ago.  It was informative (sort of).  She talked about time pacing for fibro people: do something for 20 mins and take a rest.  We had to fill out a long questionnaire and mark x's on body pictures of where the pain was and tell our concerns, etc.  My body picture had a lot of x's.  Also I told them that my doc said I either had osteoarthritis or fibromyalgia, but did not do much of an exam to determine which; and that concerned me.  I will ask for that to be addressed. 
We also were told that we have to go to the meetings and such and cannot no-show appointments or we get kicked out of the program.  I think that is a good thing. 
I am really hoping I can do this program because I just had my first day of my second year of grad school and am so overwhelmed.  I am on 4 research teams, doing my master thesis, TAing a class, and teaching a practicum.  In addition, I have a scientific journal article to work on and personal statements to write.  I am really going to have to get organized to survive!
That's all I can tell you for now.

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Date Joined Aug 2007
Total Posts : 6067
   Posted 8/26/2008 6:46 AM (GMT -7)   
What do they have groups of people with fibro going through the same program???
It sounds like you have a lot on your plate so I hope for you little pain and NO fog cause you need a clear head. idea
Good luck Sue
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Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 8/26/2008 7:37 AM (GMT -7)   
Thanks Marlee,
I am going to work today on organizing everything so it will be simpler to handle.

Groups of people: something like that. not everyone has fibro. some are there for other reasons. but they do have a fibro class because the cause of pain is presumably different from others at the pain clinic.

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Date Joined Apr 2004
Total Posts : 6056
   Posted 8/26/2008 7:56 AM (GMT -7)   
I have arthritis in my spine, shoulders and knees along with having fibro my whole life. If you can get some relief from the arthritis pain you can usually handle the fibro pain if you are careful with yourself. One thing that I have found is that when I'm doing something absorbing, like decorating a cake or paying my company bills, I don't notice the pain so much. When I finish I usually have a flood of pain from sitting so long but it's something I cope with. So if you have lots to do then you may find that you have less pain when you are working and more pain when you are resting. If this is the case for you I'd recommend lots of hot showers, gentle stretches, mild analgesics, heating pads, electric blankets and muscle rub creams. There are breathing exercises and forms of meditation that can lead to muscle relaxation as well. You can do this! We can help!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 8/26/2008 1:34 PM (GMT -7)   

Jeanie, thanks.  You are all so awesome.  yeah   I've noticed the same thing about being distracted when busy, then later noticing the pain from overdoing it.  I will definitely use your advice.


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