I'm new here and have questions

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New Member

Date Joined Aug 2008
Total Posts : 1
   Posted 8/31/2008 10:08 AM (GMT -7)   
I apologize if this is an old question. Is it possible to have Fibromyalgia without being tired or weak? I have had bilateral pain for more than ten years. It is a daily part of my life, sometimes better than others. There is never a time when I don't feel some pain somewhere. The mornings are most difficult, but as I start to move around, it gets better. I've always done a lot of exercise and usually suffer afterwards. I do have some Osteoarthritis and have had a total knee replacement. I have been on 200mg of Celebrex for over four years, with only a small reduction in pain. I recently stopped the Celebrex due to concerns about Cardiovascular issues and I am worse. I think my pain level at this point has crossed a threshold that is becoming intolerable. about five years ago, I went to a Rheumatologist who said I did not have Fibromyalgia because his patients with it could not bear the pain of being touched. I certainly am not there, but I have almost all of the painful pressure points that are described as being associated with Fibromyalgia. My stiffness, achiness, inability to sleep because of pain, memory loss, all seem to fit the diagnosis. Any depression I feel is mostly related to being in pain all of the time. The one thing I do not have is fatigue. I manage to be fairly energetic, all the while trying to ignore my pain. Is there any advantage to an actual diagnosis of Fibromyalgia? Should I try a new Rheumatologist?
Thanks in advance for any replies.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 8/31/2008 12:27 PM (GMT -7)   
Hi, Mimi, and welcome to the forum!  I think some people don't have the severe fatigue that others have.  The pain seems to be more of an issue.  I know that I do well in the mornings, after the initial pain and stiffness improves, but I do get tired in the afternoon.
Everything else sounds like fibro but it's good to get a diagnosis.  Fibro mimics other illnesses.  You want a doctor that does believe fibromyalgia exists and they also need to run tests to rule out other problems.  I have fibro but I can be touched, so I don't really agree with your rheumatologist in that area.
Check out the Fibro 101 thread.  It's the second thread on the forum.  There is a lot of good info in it.  There is a link to What Else Could It Be?  You may find that interesting, too.
Meanwhile, I'm so glad you joined us.  Read back posts and ask questions.  We are here to help you.  Hope to hear from  you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 8/31/2008 12:58 PM (GMT -7)   
Welcome to fibroland. :-)   I hope you'll find out what a warm, welcoming, group of people there are here.  We really are a family, and for me, I feel closer to some of y'all then I do my real family. blush    You've already gotten some wonderful advice from Sherrine-read Fibro 101.  I can't even count the number of times I've read it-cause I always have new questions.
In my opinion, it couldn't hurt to see a new rheumy.  Everything you've mentioned SOUNDS like fibro, but, like Sherrine said, these symptoms can mimic a lot of other conditions and diseases.  Personally, I am in lupus-limbo, and while almost all of my symptoms scream lupus, I've finally come to the realization that I may just have "lupus like" symptoms. eyes
Also, you'll quickly learn here that fibro affects everyone differently.  My sister also has fibro, and she seems to manage well with little pain meds and she can still work a full time job.  I have to take a ton of meds just to manage (I never feel comfortable), and right now, I'm on disability. sad   So, as you can see, everyone is different, and everyone manages the pain, fatigue, etc., in different ways.
Alrighty, I just wanted to welcome you to the family.  We are always here if you need us. :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
"I'll take the Chivas instead"
-Kelly Clarkson

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41820
   Posted 8/31/2008 2:16 PM (GMT -7)   
Hi Mimi,
Another welcome to HealingWell.  I am so happy that you have joined us. 
As the others have mentioned, the fibro 101 thread is very informative.  I think that you will find a lot of good information on there. 
As for the fatigue issue, you are lucky that you aren't suffering with that.  It makes it hard to even hold a conversation.  I myself, can handle the pain, so far, but not the dreaded fatigue.  I can't even leave my house some days when it comes to that.  You really are fortunate that you don't suffer with that.
Also as the others have mentioned, you probably should find another rheumy.  Look for one that does believe in fibro.  I hope that there are a number of them for you to chose from.  Where I live you have to travel at least fifty miles to see one.  With the gas prices, that can be difficult.
Here's wishing you a wonderful day.
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 8/31/2008 8:22 PM (GMT -7)   

Hi mimi, welcome.  Its sounds like fibro, if your rheumy is treating you , you might as well stay, but no harm in seeing another one if you feel the need.

SHERRINE so right about how it mimics.  I am never sure if I have something wrong with me or wether its the fibro.  Went to doc three times last year saying had urine infection becasue of burning only to find I didnt. The burning was fibro and there has been so many other things where ive had to decide whether it was fibro or not.  My sister in law has ms,  her pain is very similar to mine.I read somewhere that fibro mimics ms,  If I was ever in doubt about a health issue I would see another doc to be sure and not mention the fibro, sorry to waffle , totally gone away from the point.

Mimi, I think you do have fibro, anyways I know youll get any info you need from this site it has helped me heaps.   sue2z turn turn

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

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