Hello to all of my fibro-buds! How in the heck is everbody (silly question....we all have fibro
don't we)? So sorry I've been away so long. Life seems to have shifted into overdrive and time has become a precious commodity as every waking moment seems to be so dang full of stuff to do leaving little or no time to visit. Especially with school restarting.....my daughter is now in 7th grade and the homework levels are nightmarish as well as the complexity of the subjects.
Anyway, I told y'all I would keep y'all posted on the results of the blood tests the rheumy runs every 6 - 7 weeks and the progress of the glutathione/atp injections. I'm becoming more and more convinced that chronic EBV may be the driving force behind my fibro & cfs. I had my 3rd set of blood results last week and they showed still-high levels of EBV IGG.....an indicator of active EBV.....as all 3 tests have been high. I also had slightly off gamma-globulin levels (not real sure what that means) and off levels of something called cyclic amp (not sure about that either.....she didn't really seem too concerned about either of these). All other tests were within the set ranges for normalcy. The glutathione levels have risen to the point where she took me off of the shots with only atp pills to take daily now. I've had a couple of fairly minor flares during this whole time period but still nothing approaching how I felt before my first visit in early June.
The bottom line is I think the glut/atp shots worked really well in lessening most of the symptoms as well as putting a couple of them to sleep for an extended period. I was not, by any means, symptom-free during that time but they were much more manageable, even during the flare-ups. The fatigue/tiredness level seems to have gotten somewhat worse over the last couple of weeks which, i guess, could be a result of the continued high EBV activity. I'm thinking strongly about trying that malic acid/magnesium regimen now that the shots have ended to see if that does anything.....there should be no interaction with the atp. I'm still drinking that Monavie stuff too but I really don't know what effect, if any, it is having. Since it would require me to stop the atp and not try the malic acid/mag regimen and do nothing else but the Monavie for a period of time to test it's effectiveness, I'm hesitant to do that for fear that I might return to pre-rheumy days and I really don't want that!
Gentlest of hugs for everybody.....I missed y'all so much!
Dx'd June 2008 with Fibromyalgia & CFS possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
Several meds too numerous to list or remember!