Getting the diagnoses...

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Regular Member

Date Joined May 2008
Total Posts : 223
   Posted 9/8/2008 3:52 PM (GMT -7)   
Hi everyone.
I have not received an actual diagnoses of Fibro as of yet...I am on Lyrica, Hydrocodone, and a few other drugs. My doctor has referred me to a rheumetologist for the confirmation. My doc has eliminated everything else, and he just wants to see if the rheumetologist will find something that he missed, but he doesn't really think that will happen. He has been hesitant to actually diagnose me because I am so young (20), but he is now certain that is what I have. It's the only thing that makes sense because all the other tests have been fine.
Some of my family thinks that I am making all of this up. They say my pain is just all in my head, or a part of my depression. To me, it is a vicious cycle. I am in pain and tired, which makes me depressed, which makes my pain and fatigue worse, which, in turn, makes me more depressed. I just wish that I had my family to back me up instead of looking at me skeptically and thinking that this is just an excuse to get attention. My husband believes me, and so does my grandma (who also has fibro), but it seems like everyone else just thinks I am making it all up. It hurts to not have most of my family on my side. Everyone needs support, especially from the people who know them best. It's very sad. But at least I do have some people who believe me.
Thanks for letting me rant.

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 9/8/2008 4:41 PM (GMT -7)   

Hi Tiki and Welcome. You have two ppl there who believe you have FMS, and those are two very important ppl in your corner. The others don't seem to care enough to accept what you say, so don't look for support from them. I would do what I can do and not worry about 'them'. You only have so much energy, don't waste on ppl who don't support you.

There are several of us on here that have had this since childhood. There is no 'law' that says it doesn't hit till your 50+yrs old.

Start on pg 1, look up Fibro 101, there's a lot of good info there, read over the posts, current and older ones. A lot of good suggestions to help you LIVE your life. Post here, ask questions, share your ideas of things that help you, we all try to help each other.

Hope you have a good evening.

God bless.  Alice.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17523
   Posted 9/8/2008 5:03 PM (GMT -7)   
Hi, Tiki, and welcome to the fibromyalgia forum!  I'm so glad you joined us.  Alice has given you some good advice.  The Fibro 101 thread has links to a lot of good information.  You could try printing some of it out and pesenting it to the people who don't believe you.  There is a good link about doctors responding to a New York Times article.  You will find that interesting.
Meanwhile, read back threads. There is a world of info in them.  Don't hesitate to ask questions, either.  We are here to help you.  I hope to hear more from you soon!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jun 2008
Total Posts : 261
   Posted 9/8/2008 7:07 PM (GMT -7)   
Being so young doesn't mean you can't have it. I'm only 24 and I suspect that I've had it to some degree for most of my life, but it just started getting bad within the last year.

Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

Veteran Member

Date Joined Aug 2006
Total Posts : 9657
   Posted 9/8/2008 7:14 PM (GMT -7)   
Hello Tiki,nice to meet you. Wish it was under better circumstance thought. Sorry your having problems with family, I have that too, I look young and am expected to do everything.
I sure wish I could, but family sometimes just don't get it. Believe me friends will treat you better, that's what I've found to be more true.
Have you tried looking for a fibro group in your area to get some support, try doing a google search and I hope you can find a good support group.
There is a magazine on fibro you might wanna get, I have one and it has loads of info in it...
I wish you get relief soon...
lots of soft hugz
* Asthma
* Allergies
* Osteoarthritis
* Spinal Stenosis
* Mild DDD
* Enlarged
Pituitary Gland
* Fibromyalgia

Patient: "I always see spots with my eyes"
Doctor: "Didn't the new glasses help?"
Patient "Yes, now I see the spots clearer"

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 9/8/2008 7:47 PM (GMT -7)   

The only way you'll get a diagnoses is to see a specialist.  I saw both a nureologist, who initially diagnosed me and then a rheumetologist, it took me two years  of running around trying to get it sorted .  Two docs two rheumys but now I  have them on sided.

It is a long road but you have to ask to see specialists and it may take more than one, you can also try other docs over period of time you may find one more sympathetic.Ask for two referals that way if one doesnt work out you dont have to wait anothe 6 weeks or so. hope you get results soon.   sue22z turn turn turn

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 9/8/2008 9:41 PM (GMT -7)   

me again, sue2z.  My family didnt beleive or understand either.  My stepmother accused me to my face of being out for attention. I have very low self esteem but even I have a point which I stand up.  She made me cry and I knew she had talked my father rouond to her way of thinking so I no longer see them.  I cant see people who think im putting this on, not after I had to fight for years to even get the docs ect on side, but my own family, nope.  I feel a sense of freedom now although it hurts.  There is no room in this to have people around that bring you down. I cant see them after having that said to my face.  The rest of my family underdtand up to a point and I just have to be happy with that.  Weed the negative out, there is no room in this to have that around you.   sue2z shakehead shakehead

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined May 2008
Total Posts : 223
   Posted 9/9/2008 5:53 AM (GMT -7)   
Thank you all for your nice welcome.
I am close to the diagnosis...I am going to see a rheumy next month at the IU med center. My doc is waiting for his confirmation, and then it will be official.
Some of my family is sympathetic, but they don't really understand. They keep telling me that I need to just get up and do what needs to be done, push past the pain. Well, I can only do that to a certain point before I collapse with exhaustion and pain.
My grandma really understands because she has Fibro too, and she has a lot of other stuff going on too. It's nice to have her on my side. My sister has not said anything to my face about not believing me, but she has said it to my husband, and he told me about it. It really hurts that she doesn't believe me. I am trying to be close to my sister, but it is hard when I have to refrain from talking about all the pain that I am in...
I am so happy I have found a forum where there are plenty of people who understand and who can offer advice and comfort and an e-shoulder to lean on.
Thank you all so much.
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.

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