Has anyone else been diagnosed with Fibromyalgia when pain is not at the top of your symptoms?

Out of the six choiced what is your top symptom with Fibromyalgia?
Insomnia - 5.9%
Memory Loss - 11.8%
Poor Concentration - 5.9%
Pain - 76.5%
Irritable - 0.0%
Depression - 0.0%

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New Member

Date Joined Sep 2008
Total Posts : 3
   Posted 9/14/2008 12:47 PM (GMT -7)   
I have been diagnosed with Fibromyalgia as well as clinically diagnosed with Lyme disease. My Fibro doc says that I absolutely do not have Lyme disease.
Pain is not a top symptom for me when I list my symptoms. In fact, it is close to the bottom. The doc said that there doesn't have to be any pain with Fibromyalgia. I had always thought that there had to be pain with it or pain at the pressure points. My doctor says no. My top symptoms are severe chronic insomnia, concentration when driving a car or doing just about anying, memory loss, and fatigue because I am not sleeping.
Has anyone else been diagnosed with Fibromyalgia without the pain or the pain not being high on your ladder of symptoms? I would love to hear how other people are being diagnosed.
Thanks for your help!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 9/14/2008 1:01 PM (GMT -7)   
Hi, Hope, and welcome to the fibromyalgia forum!  Pain was, and still is, at the top of the list for me.  Concentration and fatigue are next.  You sound more like you have an insomnia problem.  Lack of sleep can cause the problems you listed.  For people with fibromyalgia, lack of sleep increases our pain.  We have problems getting in the deep restorative, healing sleep.
Check out the Fibro 101 thread...the second thread on the forum.  You will find a lot of good information about fibromyalgia, including a list of symptoms, that could help you see if you have fibro or not.
Let us know what you think.  Hope to hear from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Sep 2008
Total Posts : 3
   Posted 9/14/2008 1:04 PM (GMT -7)   
Thanks Sherrine!

New Member

Date Joined Oct 2007
Total Posts : 11
   Posted 9/14/2008 2:52 PM (GMT -7)   
That is interesting. My pain is at the top of my list. I always explain it as feeling like I have the flu all the time. Kinda like those body aches you get and that worn down tired feeling from being dehydrated. I also suffer from insomnia. I think you will find so much information here and it is a great place to start! I learned so much by using the resources available on this site, also by reading the posts. Welcome to the forums!
DX: Migraines, Fibromyalgia, Hypertension, Depression/Anxiety, Tension Headaches.
Meds: Cardizem, Inderol LA, Keppra, Lexapro, Pamelor, Zomig PRN, Ambien PRM,Lortab PRN, Soma PRN, Esgic Plus PRN, Zofran PRN. I also get trigger point injections in my neck every month for tension headaches.

Veteran Member

Date Joined Jun 2008
Total Posts : 844
   Posted 9/14/2008 3:32 PM (GMT -7)   
Fatique is at the top of my list and then pain is next.  I also have trouble staying asleep and fibrofog is almost at the top of my list too.  I have pain almost constantly, but I think it might also be because of my osteoarthritis that I have all over my body.
I have heard more than one of this forum say that pain is there but not at the top of their list.
God Bless!
Of all the things that I have lost, I miss my mind the most!!!!

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 9/14/2008 4:04 PM (GMT -7)   
I've been through periods where fatigue was on the top of the list and pain was second.  But, for the past several months, pain has definitely been on top. 
"There is no charm equal to tenderness of  heart." - Jane Austen
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.

Regular Member

Date Joined Aug 2008
Total Posts : 326
   Posted 9/14/2008 11:48 PM (GMT -7)   
It's a toss up for me as to whether it's pain or fatigue. During he summer months when I'm doing as well as I can, then it's the fatigue that gets to me. I perpetually amd walking around working saying, "Where's the nap mat and cookie that they promised me?"

Winter time though is all about the pain. I'm not sure if it's more from the sensitivity to temperature cause of the fibro or the cold on the joints that have arthritis in them. Either way, it's not my favorite time of year.

Once of these days I'll finally get around to moving out to the high desert where I wanted to be. It may get cold and occasinally snow, but at least it's not the perpetually alternating wet/dry days that I live with - regardless of the season here.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 9/15/2008 6:18 AM (GMT -7)   
Hi Hope and welcome. Mine started with anxiety, fatigue and maybe some depression. It took quite awhile before the pain started. It took an all out flare to get a dx. If I had any of the tender points before the first flare I didn't pay any attention to them. I didn't know anything about fibro so I wasn't looking for any of the symptoms. Mine was gradual onset. Fatigue is still at the top of my list unless I have a flare. I have more pain from osteoarthritis than I do from fibro most days. I have pain from fibro everyday, it's always there to some degree but not at the top of my list.
Stick with us, you will learn a lot on here.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 9/16/2008 7:39 AM (GMT -7)   
Personally, I think that FM is always changing.  When I first got symptoms, I was complaining more of fatigue, and a general ache in the legs, but I coudl easily ignore that.  Then it went to confusion, dizziness, and memory loss.  A few months after, fatigue took the lead again.  I don't think the summer heat helped me there at all.  But during this time I was wondering if I could really have fibro, as I didn't feel much pain at all.  Now lately, I'm experiencing sharper, more localized pain and burning.  I am quickly learning that FM has many, many faces, adn everyone is affected differently.  That is why I love this forum so much for helping me figure out what is goign on with my body.  Many symptoms aren't listed on the main fibro articles I've read.  The best way to understand this is to share with others who are goign through the same things.
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....

Regular Member

Date Joined Aug 2008
Total Posts : 96
   Posted 9/16/2008 4:29 PM (GMT -7)   
Mine started with fatigue and just aching all over, but then it developed into a bad flare. Severe neck and back pain sent me to the doctor. After an MRI, and 2 epidural injections (one in my neck, then one in my low back) the doctor diagnosed me with fibro. This pain has gone on for 4 months now and I am desperately trying to find relief. I am doing aquacise which feels wonderful while I'm in the water, but the pain always returns afterwards. I keep rejecting the idea that I have fibro and have been having a really tough time accepting it. I suppose this is normal, and it's something that I just have to come to terms with.
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost

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