Thank you and flares

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2008
Total Posts : 3
   Posted 9/18/2008 11:08 AM (GMT -7)   
1st off I want to thank everyone who has answered my 1st question and to those of you who post about yourselves. I have learned so much in the last few days and now I know I'm not crazy, others feel the same way I do. (which I'm sorry for) What a wonderful place for support, with such wonderful caring people.
I have what seems like endless questions. I will start out with 2 that have been bugging me the last few days.
 1. When you are having a flare, what the longest it has lasted?? ( I am going on my second week )
 2.The last month or so I have been having tailbone pain (something new) I have a hard time getting up after sitting. OUCH!! Anyone else experience this?

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 9/18/2008 11:37 AM (GMT -7)   
Hi, Sheeba, and welcome!  I'm so glad you joined us!  I just wrote you a long post and it disappeared into  La La Land.  Grrr.  Also, I don't know how I missed your first post, but I did.  blush    I'm sorry.  I'm sure you were directed to the Fibro 101 thread...the second thread on the forum.  There is a lot of good info in that thread.
I have had flares last as long as a couple of months.  It doesn't happen often but it has happened.  I usually have good control of my pain.  I take ibuprofen (with food) and Tylenol for pain and I take malic acid/magnesium supplements for pain and fatigue.  There is a link all about the malic acid/magnesium supplements in the Fibro 101 thread.
When I am in a flare, I take advantage of hot showers and rice bags that you heat in the microwave that give off moist heat.  You can get a Bed Buddy at Walgreens and other places that does the same thing.  They feel so good!
You need to keep moving or  you will be stiff as a board.  The Great Stretching Exercises found on the Fibro 101 thread are very good.  Walking is excellent, too.  It gets the blood flowing and feeding the muscles.
I have had my tailbone hurt if I've been sitting too long or sitting on something hard.  Right now I'm sitting on a memory foam pillow that's on my desk chair.  I also get up frequently when I'm on the computer so that helps keep that problem away for me.
I hope I have answered some of your questions.  I'm sure others will be on soon with other suggestions.  Have a good day!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 9/18/2008 3:32 PM (GMT -7)   
Hi. I don't know about flares. Im still figuring this all out. Right now I feel awful: fevery and achy and exhausted. Ive had the tailbone pain for a couple of years. I now sit on chair cushions with the button in the middle that makes a little dent in the cushion and I also have a coccyx cushion at home at my desk. The physical therapist said to use a lumbar pillow and that will put your weight on your sitz (spelling?) bones instead of your tailbone.

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 9/18/2008 8:25 PM (GMT -7)   
Hi Sheeba and just wanted to welcome you!

I too am just figuring all this out. I do notice my bottom hurts if I sit for any length of time at the computer or kitchen table and the chairs have cushions- jeesh! I don't get the tailbone pain. I do get up and walk around and that seems to help.

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
Zoloft, Tylenol 4000 mg., Zanaflex

Regular Member

Date Joined Jul 2008
Total Posts : 40
   Posted 9/18/2008 9:00 PM (GMT -7)   
Hi Sheeba. and welcome. I'm pretty new here and this is a great place.
flares......I had one last from last October of 2007 until early spring of 2008. Months. Horrible awful. I had just a few good days then. At least 6 months. I went to a different Dr. almost every week and came down with every illnesss imaginable then. (my immune system went crazy and does when flaring) I lived through it and there were days I truly thought I was going to die. I made myself get up and do my usual daily routine and it either prolonged the flare or made me feel normal. (i'm still trying to figure that out) lol eyes I was on a lot of meds to help me through it and they worked but the flare was my 1st big-time one. I  had previously had a few but not any like the big one.
Tailbone hurts like crazy if I sit on my rear in a certain position for too long. (I thought I had kidney problems or something when this 1st started happening to me but my husband reassured me that the kidneys are up quite a bit higher) scool I now sit on a pillow or switch positions and I sit on my legs a lot. I'm a floor-sitter so this probably adds to my problem. Not too smart on my part, I know.
I have had fibro forever but was diagnosed a couple of years ago. (maybe 3) sorry for my memory lapse, there. darn. Might be going on 4 years with an official diagnosis...I'm foggy.
Best of luck to you!!

Regular Member

Date Joined Aug 2008
Total Posts : 326
   Posted 9/19/2008 3:46 AM (GMT -7)   
As for how long flares last there's no really good answer. It depends on the person, how bad the flare is, how well they care for themselves during it, and if the sun moon and stars are in just the right position and if you're crossing your fingers at the very moment you had onset of the flare. lol. Just kidding.

On the serious side of it... There are so many variables that's it's really hard to say. For me, almost all winter every winter is a flare for me. It's my worst time of year. Right now, I happen to be in a bigger flare than I've ever had. It's been with me for a while now. Ever since I had unexpected surgery(towards the end of June). It's like I never stopped hurting from the surgery, and it's also feels like it's in the major joints as well. Thankfully, I have a doctor that's reasonable and was willing to bump me back up to narcotics again even though it's not gotten cold here yet.

Some people, myself included, have had flares that only lasted a few days or a week. I wish I had a better answer for you, but that's the most concise one that I can give.

Veteran Member

Date Joined Oct 2004
Total Posts : 4083
   Posted 9/19/2008 5:07 AM (GMT -7)   
Hi and another welcome to our fibro fourm here at heallingwell.
I had my first real bad flare about 4 years ago . i was real healthy then bam, everything hit me at once, and was winter, i used to walk 3 miles in our woods evry day. ANd one day i just couldnt walk at all, it was cold , but that never stopped me before, I also have DDD, so its hard to tell,I think the arthritus threw me into a flare. I went to many different doctors, finally a rheum said i had fibro, however infectious disiease doctor disagreed becasue i didnt reactto the tender points, so i dont know, i have periods where things hurt for know reason a all. I have severe arthris is my knees. I will be 40 in Jan and was hoping I would be in better shape. I went form a 125 in the best shape of my life to almost 200 lbs, and im only 5.3, so the weight needs to come off.  My sister is sending me a pilates dvd. I hope I can do it. I trying to walk the woods again and eat more sensibley, i have been up and down on my weight. Last summer i was very sick and lost 40 lbs looked great felt terrible, found out i had gastroparisis( a parlyzation of the stomach).
I am finally feeling better from that hence the double wiehgt gain back.
Oh you asked about the tailbone, while at the moment it doesnt not hurt to bad, when i was 30 nearly 10 yrs ago, 6months after my daughter was born so i was almost 31, anyway, eveytime i would get up from  a seated position didnt matter what i was sitting on, the pain upon getting up was excrutiating, i went ot my pcp and he said your just getting old, i was 30, qnd that is not and still is not an exceptbale answer. I t went away about 6 month later, it still hurts form time to time, but not like that.
Ice seemed to help that so it was probably not fibro reltated for me. Although heat sometimes helps my knees ands arthritus, so its hard to tell, ice helps my knees to so i switch off and have many knee exercises.
Even though i enjoy the cooler weather becouse i feel like i want to walk ans stuff becasue its not so hot I thinks its the worst for my fibro and and arthritus, it seems to hurt more. Even small weather changes can feel a differenece in how your body reacts. I used not care about being in the sun but now it maks me feel sick mainlly in summer, winter sun not so bad, summer sun so bad i wont go swimmg, even though its the best if not only esxercise for me, i wish i had more money and gas would go to y year round may try to this winter the y closest to me finally got a pool, so i would love to take the aerobic water classes, i wish our pool was indoors.
Ok thats my story hopefully as time goes by it will see a better me, I hope enjoy our forum and post plenty smurf
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
 Plz help HW to help others by donating:

M&M lover
Regular Member

Date Joined Sep 2008
Total Posts : 21
   Posted 9/19/2008 5:21 AM (GMT -7)   
This is my 7th year and each year I get my flare this time of year and it lasts until Feb/March.  Pretty much all winter long.  This is my busy time of year too with my girls in school, sports, PTO president, working full time, etc, etc. so I know that attributes to it as well.
I just keep telling myself every day that I can't die from this and for some strange reason that helps me get going and make it through my day.  At night I think I'm asleep before my head hits the pillow!

New Member

Date Joined Sep 2008
Total Posts : 1
   Posted 9/19/2008 12:13 PM (GMT -7)   

Hi everyone.  I'm new to the forum, although I've had FM for about 15 years.  I've really enjoyed reading your posts and have gotten some good info.

I'm not on any medication, other than OTC supplements and tylenol.  When first diagnosed I tried everything that I'm sure you all did...anti-depressants, muscle relaxants, sleeping pills, etc., for many years.  I finally took matters into my own hands, and although it wouldn't work for everyone, it did for me.  I simplified my lifestyle to the bare minimum; I take some me time every day (something I know that most people can't do); I try to exercise every day; and I keep a positive outlook on life.  I mean I'm still here...kicking and screaming maybe, but hey that's better than the alternative, right??!!

Anyway, that's just to give you a bit of background on me.  My point of posting this message is that right now I'm experiencing a pretty bad flare up, going on since March actually, and it's getting to the point where I'm having a really hard time functioning.  I get up in the morning, exhausted, and push myself to go to work.  I could easily fall asleep driving to work and have actually dozed off in my office.  Someone tellls me something and I need to go back to them because I can't remember what they've said (so I've been getting them to send anything to me via email).  The brain fog is terrible and I am definitely not performing at full capacity.  What I've been doing for the past while obviously isn't working right now and I'm trying to find something to get me through this flare up.  I'm going to try the malic acid / magnasium to see what difference that might make, and I read something about some pancreatic enzymes (to help with the bloating/swelling).  Do any of you have any other suggestions? 

I know I should see my doctor, and I may if I don't find some relief on my own soon.  I'm hoping that I will pull out of it before I need to do that.  But I know that might be a bit unrealistic.  I'm sorry to write a book.  Next time I'll try to keep it short and sweet. :-)

Veteran Member

Date Joined Jun 2008
Total Posts : 844
   Posted 9/19/2008 8:26 PM (GMT -7)   
Hello Sheeba and CuddlBuns.  Just wanted to welcome you to our fibro family. 
Sheeba I too have the tailbone problem and I think it's worse when I sit at the computer too long.  I have found out that although it hurts when I get up at work, it's not as bad as sitting so long at the computer.  I think Sherrine give you good advice.
I'm looking forward to hearing more from both of you.
God Bless!
Of all the things that I have lost, I miss my mind the most!!!!

Regular Member

Date Joined Aug 2008
Total Posts : 96
   Posted 9/19/2008 9:09 PM (GMT -7)   
My flare started on May 16th and is still going on. The pain is getting somewhat better so I'm hoping that I'm near the end of this flare. I was fine and the it hit me like a ton of bricks.
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 3:23 AM (GMT -7)
There are a total of 2,906,388 posts in 318,951 threads.
View Active Threads

Who's Online
This forum has 158289 registered members. Please welcome our newest member, shibainu123.
200 Guest(s), 2 Registered Member(s) are currently online.  Details
NiceCupOfTea, mareish