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Veteran Member

Date Joined Sep 2008
Total Posts : 532
   Posted 9/30/2008 3:36 PM (GMT -7)   
confused  When i had blood work and i mean alot of it 3 different times in a week span the DR. had told me I was positive for epstein barr i asked what that meant and he said that i had mono at sometime in my life.. I did as a teenager i have read alot of post here wher alot of people say they have epstein barr  can some one explain the difference and should i look into it more.
Im sorry i keep posting so many topics but this is still all new for me and I am trying to learn as much as I can and everyone seems very knowledgable.VIEW IMAGE 

Regular Member

Date Joined Jun 2008
Total Posts : 168
   Posted 9/30/2008 4:18 PM (GMT -7)   
Hi LeeAnn! Don't ever feel like you're posting too many topics or asking too many questions.....when we learn about these conditions we have it is only natural and human to thirst for more knowledge. If you don't ask questions you'll never get all the answers you need to help you! This is a wonderful site with many generous, compassionate, loving and helpful people who are more than willing to share anything and everything they have with you. All of our number 1 goals are the same......the quest to feel better!

I have positive Epstein-Barr as well as positive ACTIVE Epstein-Barr. Along with my dx of fibro and cfs, I was also given the dx of cebv (lucky me).....Chronic Epstein-Barr Virus. It has been high and off the charts for months now....ever since my first rheumy visit and first round of tests. The only real relief I experienced from all 3 dx's during that time was a trial period of glutathione/atp shots that made a world of difference in how I felt. She took me off of them my last visit and I have slipped almost all the way back to where I was before my first visit. The shots only slightly lowered the ebv counts but made such a huge difference in how I felt. I'm eagerly looking forward to an October appointment with hopes of getting her approval of starting the injections again if, for no other reason, to see if it results in the same huge remission of symptoms that happened before!

Again dear......ask away to your heart's content! Knowledge is definitely your friend!

Gentlest of hugs,
John (53)
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
Several meds too numerous to list or remember!

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