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Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 10/3/2008 11:28 PM (GMT -7)   
The doctor said I have fibromyalgia, myofacial pain syndrome, hypermobility joint syndrome in hands and hips and osteoarthritis and sent me to the physical therapist for help.  He said, "look at how flexible you are. your hip joints are hypermobile." 
The physical therapist said, you are just flexible, not hypermobile.  She also pushed and poked on me while she was talking.  It hurt in some places, but I kept quiet.  Then she says, "you didn't complain on any trigger points when I pushed them!"  What am I supposed to do, interrupt her every few seconds and say, "ouch, that hurts."  I told her, yes you did push some sore places, but I was listening to you talk.  sheesh
Anyway, I am trying to learn the pain clinic and what I am supposed to do.  They said they wouldn't give me a pill for help, but then gave me pills right away.  I got cortisone injections for the myofacial pain and I was hurting 5 days later and the doc scheduled me for botox instead.  The nurse wanted to know if the cortisone didn't work and I didn't know. I thought I had aggravated it somehow, but she didn't like that answer.  Turns out I aggravated it by belaying someone on the climbing wall.  Figured that out today after I belayed 3 climbers again yesterday.  So i cancelled the botox and am going to try to stop triggering flare ups and see if that helps.
I know they are trying to help me, but it would be nice if they were on the same page. 

getting by
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Date Joined Sep 2007
Total Posts : 41902
   Posted 10/4/2008 2:52 AM (GMT -7)   
When you felt pain in your tender points, you should have told them. That is why they were probing. You have to let the doctor's know when you hurt. Or else they will think otherwise.

One of the ways to stop triggering flare ups is to avoid stress and strainuous things with your body.

I hope that you find what is right for you.

Best wishes and keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/4/2008 8:13 AM (GMT -7)   
When my doc was doing the tender point test I had no idea what he was doing cause I knew nothing about fibro but when he would push on a spot I would grab his hand which is a natural reaction to someone that is causing you pain.
So have her do the test again and squeeze her hand as tight as you can when she hits a sore spot and maybe she will get the message. devil
I have myofascial pain syndrome (MPS) and I've not heard of cortizone shots or botox for it. I have knots all over my body so do they inject the botox in the knots??? There are some wrinkles on my face I would like to have some botox in. turn
I too am very flexible for my age but I was very much into tumbling when I was young and it took some doing to stretch the muscles so I could do the splits and flips etc. So when the pain doc said something about me being so flexible I explained to him why. I can still put my hands flat on the floor when bending over but my back lets me know it doesn't like it for awhile.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
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Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 10/4/2008 11:46 AM (GMT -7)   

Karen, That is a good idea.  I will tell her next time.  I couldn't tell if she was probing or doing some kind of physical therapy on me.  ha ha

Marlee, this is how I understand it: the knotted muscles can cause pain which cause more knotting of the muscles.  The cortisone is supposed to help relax the muscles and stop the cycle.  If the cortisone works, but only temporarily, then botox will work for longer.  Maybe you can get the doc to inject a wrinkle or two while he or she is at it!   wink The key is not to go about belaying people on a climbing wall.  I am still sore from that! The pain clinic program manager explained that it is frustrating not to be able to do things we used to do, but we can do those things, just pace ourselves more. 


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