Does fibro hurt constantly or mostly when trying to move?

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Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 10/7/2008 10:11 PM (GMT -7)   
I'm needy these days, I have been posting like crazy, but I have another question.  I have random pain that hits me while at work (arm will hurt for a second or a leg will hurt), but I'm talking about I hurt 90% of the time just moving and doing normal life, lifting the coffe pot, opening the car door, bending over, walking, moving funny at work while reaching for something, but if I'm resting on my couch I feel good I may have a headache or my neck and shoulder will ache after bending over a computer all day, but my point is.... can I have Arthritis or some other form of it witout redness or swelling at those sites?  I'm not saying I don't have all the other symptoms of Fibro, infact I'm confinced of the Fibro DX, but I'm worried about arthritis. 
What do you think for any replies,
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/8/2008 8:30 AM (GMT -7)   
Tricia, I'm always sore. I have TRPs all over my body but I'm not always in terrible pain. When I'm relaxed on the couch I am aware of the soreness but it has become a part of me. If I stay in one position for too long I will start to hurt and have to move. The more I do during the day the more pain I have, so using my muscles make them hurt. But I have osteoarthritis in my hands and it's the same thing with them, the more I use them the more they hurt.
I think we are both lucky that we can relax in the evenings without having horrible pain as some do.
Now when I'm in a flare it doesn't matter where I'm at I hurt whether it be sitting, standing or laying.
luv and hugs
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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 10/8/2008 12:04 PM (GMT -7)   
Hi Tricia,
I have that random, floating around pain right now.  It'll settle in my ankles, then 10 minutes later it's in my knees, then it'll move to my shoulders, then my elbows.  It's SO frustrating.  I do have arthritis in my neck, and lower back.  So my fibro pain mixed with the arthritis (and now possibly Myofascial Pain Syndrome) and my lupus, I'm a trainwreck!!!  Could I BEEEEE in any more pain!! Sheesh....
To answer your question about the arthritis - yes. I don't have redness or swelling in my neck or lower back.  Yet I have definitive, absolute xray proof of osteoarthritis in both locations.  It's rated moderate to severe as well. 
Just remember, that if this is just Fibromyalgia you have, your joints won't have inflammation in them.  Fibro isn't an inflammatory disorder.  What you're actually feeling is the pain in the muscles, tendons and ligaments that surround each joint.  Not actually in the joint itself.
Arthritis will show up with inflammation or degeneration in the joint. 
Both conditions will feel the same, but they're actually quite different and treated differently.
Hope you have a pain-free day! (I'm trying, but nothing is working shakehead )
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Jun 2008
Total Posts : 168
   Posted 10/8/2008 3:07 PM (GMT -7)   

Hi Tricia! I'm so sorry you are having such a sustained bout of pain. Except for those extremely rare good days or even rarer remissions, pain seems to be a premium no matter what you do. shakehead There also seems to be no rhyme or reason as to intensity or location. The one set of pains I can count on daily are the burning pains in my arms, hands, legs and, especially, my feet! They vary in intensity, sometimes daily, but never disappear completely. I was scheduled for peripheral neuropathy testing right around the time of Hurricane Ike but that got delayed for a while because of his unwelcome visit. sad

Gentlest of hugs,



John (53)
Dx'd June 2008 with Fibro, CFS and CEBV (Chronic Epstein-Barr Virus) after many years of ongoing and worsening symptoms......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types). Several meds too numerous to mention!

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/8/2008 4:34 PM (GMT -7)   
I have pain while sitting, standing, lying in bed. It just intensifies when I have to move. If I'm in one position for more than 10 minutes, it's like I am crippled, I have to hobble. After I take my pain meds, I can begin to funtion, minimally. because it's an in the closet disease, That is. most people would say, "well, she looks fine to me", it's very frustrating. Even the people closest to me make outrageous demands, because they can't see any scarring or bruising so, I must be fabricating the pain. Right now for example, I've been sitting in bed with a heating pad on my back, which feels nice, but my feet hurt like H---. So, now I have to try to find a happy medium. Also my left shoulder is beginning to check in. It's kind of like your (my) body trying to tell me something, something's wrong, but I can't decipher the code. weird. Earlier tonight my feet felt like someone was shoving shards of glass into them. A very sharp pain signal. Other times it's just a dull achy feeling from between shoulder blades,shooting down right arm. Another thing I noticed about two weeks ago is my right eyelid is drooping. It's like it's a "lazy eye", it doesn't want to stay open. Who knows? I sure don't. Thank-you all for being here.

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 10/8/2008 6:50 PM (GMT -7)   
i am hurting in several place. It is like a merry go round. I have not hurt this month in years.

Forget what doctor's say about exercising getting rid of pain. They lie.


Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 10/8/2008 6:57 PM (GMT -7)   


I never knew how many different forms of pain there were until Fibro.  I have a "base pain" that never leaves - I could more easily point out places on my body that don't hurt.  PLUS, I have stabbing pains, shooting pains, fleeting pains and nagging pains.  All sorts of different flavors and they seem to change with the weather.  The neverending headache is probably my most annoying one.

Arthritis type pains are normal for me too, especially on the backs of my hands and the tops of my feet - but I definately don't have arthritis. 

Take care, Tricia.



"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 


New Member

Date Joined Oct 2008
Total Posts : 1
   Posted 10/8/2008 9:20 PM (GMT -7)   
I am stunned by the remarks. Before today, I felt so alone. Noone understands how bad I hurt when I dont move or how much worse i hurt when I do. I can't go to walmart and be able to get out of bed the next day. Since I began hurting (about a year) I have found that there were days I thought it would be better to not be me. I really feel like I am worthless to my family and friends. I use to be so outgoing and now I can barely go out. Literally, because I developed agoraphobia within the last year too. Noone understands me at all. I'm not sure I do. But the pain is so intense and I'm on meds. I cant take Lyrica because of side effects so I use opiates which have made my life worse. I'm only 45 and I feel like my life is over. It hurts to take a bath which was a favorite thing for me to do. I use to teach English and now I am on disability. I don't know if my response has helped but my pain never stops and I don't even think my doctor understands. I have had RA since I was 20 but I have never taken medication. I just got insurance after a six year stint without it. So I have a lot of testing to undergo, but most days I feel like I'm dying. It was so nice to laugh at Cloris Leachman on Dancing With the Stars last night. I haven't had a belly laugh like that since the first nite she danced. I'm new here and I guess this wasnt a quick response.
God Bless you Tricia - God Bless us all

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