Good Morning everyone.
My name is Lorraine and I've been suffering with FMS for at least 21 years. I have never really had an official diagnosis. I have seen many Ortho-Surgeons over the years, and the last one I saw suggested it may be FMS. The reports were sent back to my PCP with no mention of the FMS, but with a suggestion that I see a Rheumy. Saw him, and was prescribed Bextra. Took that for about 6 months , with pretty good results I might add, but I noticed my eyes were getting really sore and I was having problems with my vision. My PCP had no explanation for this and told me to continue to take the Bextra. I took it upon myself to find more info on the drug and realized that the sore eyes were a side effect . I stopped taking it, and my eyes were fine in a week or so. I haven't taken anything regularily since then. I am also Bipolar, and take Lithium,Celexa,Clonazepam and occasional Ativan.
I have constant discomfort, but usually not so bad that I can't function daily, but I also have severe flare ups. When this happens, I try and manage the pain with Extra Strength Advil Liquid Gels or Naproxyn. I am allergic to codeine and toradol and many pain medications irritate my stomach. The advil and naproxyn doesn't usually take care of the pain, so when it gets too unbareable, I go to the ER and get demerol or morphine shots.
I've been having a flare up, or at least I think that's what it is, for over a week now. It started out in my left side, under my ribs with muscle spasm like pain throughout my left side and into my back....gradually, it moved up to my chest and across to my right side, under my ribs and into my back. As of yesterday, it had moved to the left side of my head, down my face and neck , under my collarbone and into my upper left chest and into my upper back. Its a constant pain, with periodic spasms. It makes me upset, but more angry than anything because I'm pretty much rendered useless and can't function in my daily routines. I don't work , thankfully, and do not have young children, but it still makes me feel useless at times. My husband works and then has to come home and manage the household duties many days. I am having problems finding a doctor that take my symptoms seriously. Because I have been diagnosed with Bipolar/depression, the doctors blame my pain on my depression. I live in a small community in Canada. We only have 4 doctors here, and protocol states that in order to get to see a specialist, you need a referral from one of the GP's here at the clinic. IF you're lucky enough to get one, then you have 12-24 months on a waiting list. It's so frustrating!!
I guess what I"m wondering is, how exactly, should I plead my case with my PCP? What statements should I make, and what questions should I ask so that I can get the proper diagnosis and care that I am desperately needing? Any suggestions would be greatly appreciated!
Ativan 2mg/as needed