Hi, Dawn, and welcome to the fibromyalgia forum! I'm so sorry you have lupus but you also can have fibromyalgia at the same time. Pain and stiffness seem to be the hallmark of fibro but you can have that with lupus, too. Many have been misdiagnosed with lupus and really have fibro and we also have members with both.
Check out the Fibro 101 thread...the second thread on the forum. You will find links to good information on fibro...including a list of symptoms. A rheumatologist usually can diagnose it. I'm surprised that they haven't if you jumped at the touch like that. That's usually how they tell if you do have fibro. It's a tender point test. The apply gentle pressure on certain areas of your body and if you are extremely sensitive, they usually diagnose fibromyalgia. Of course, this is diagnosed after they have ruled out other illnesses that fibro mimics. The link "What Else Could It Be" on the Fibro 101 thread tells you about that.
Also, take some time to read back posts. There is a world of info in them. You just might see yourself when reading all of this.
Keep a pain journal. Write down how you feel when you are doing things and what the level of pain is. Then take this in to your rheumatologist the next time you see them.
Meanwhile, don't hesitate to ask questions. That's what we're here for. I'm so glad you have joined us and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7