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New Member

Date Joined Oct 2008
Total Posts : 17
   Posted 10/12/2008 12:48 PM (GMT -7)   
Hi I am new to the forum. I am a 32 yr old women. I have had SLE since 1995 and lately i have been having symptoms of Fibro and i really dont know if its that and i dont know how to go about getting a diagnose or what . I know that i went to the rhemy last month and i thought that i was going to jump off my chair when he touched my shoulders and elbows and i have been so sore all over and i have been so tired i can sleep all the time and i have been having headaches and depression on top of that and i know that this isnt in my head but i just want the sore ness to ease a little i dont know what to do i know that its not the lupus so i dont know i appriate the help thanks Dawn

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 10/12/2008 1:31 PM (GMT -7)   
Hi, Dawn, and welcome to the fibromyalgia forum!  I'm so sorry you have lupus but you also can have fibromyalgia at the same time.  Pain and stiffness seem to be the hallmark of fibro but you can have that with lupus, too.  Many have been misdiagnosed with lupus and really have fibro and we also have members with both. 
Check out the Fibro 101 thread...the second thread on the forum.  You will find links to good information on fibro...including a list of symptoms.  A rheumatologist usually can diagnose it.  I'm surprised that they haven't if you jumped at the touch like that.  That's usually how they tell if you do have fibro.  It's a tender point test.  The apply gentle pressure on certain areas of your body and if you are extremely sensitive, they usually diagnose fibromyalgia.  Of course, this is diagnosed after they have ruled out other illnesses that fibro mimics.  The link "What Else Could It Be" on the Fibro 101 thread tells you about that.
Also, take some time to read back posts.  There is a world of info in them.  You just might see yourself when reading all of this.
Keep a pain journal.  Write down how you feel when you are doing things and what the level of pain is.  Then take this in to your rheumatologist the next time you see them. 
Meanwhile, don't hesitate to ask questions.  That's what we're here for.  I'm so glad  you have joined us and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41909
   Posted 10/12/2008 1:36 PM (GMT -7)   
Hi Dawn,

I too wanted to welcome you to the fibromyalgia forum. You will find that reading back posts can be so helpful. The members here are wonderful too. I know that you will be glad that you joined us.

Ask questions if you aren't sure of things, you will find that a lot of us have been through the same as you have and it feels good to confirm that you aren't the only one. That always helped me. I feel a little more normal, well, as normal as fibro can be. I guess I feel so not alone.

Take care, keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 10/12/2008 4:28 PM (GMT -7)   
Hey Dawn,

And welcome to Healing Well We are so glad you are here.

The thing that helps me when all else fails is a very hot bath. I can even fall asleep sitting up in a hot bath. It is that good for helping with the pain. Of course the water gets cool with time, so you have to wake up and add hot water LOL. But seriously, try it when you are in a lot of pain. It helps for at least thirty minutes and some times that breaks the cycle and helps until the pain meds kick in.

Also for me the Lyrica helps. I am trying to establish a dose that works on the pain but doesn't put me to sleep at the same time. I will get get there. I also take Percocet every four hours for the pain as well. Before the Lyrica, the percocet didn't fully take away the pain, but since the Lyrica, it does.

Anyway, that's what works for me. Hope you continue to post and let us get to know you more and more.

God bless and gentle hugs.

Moderator Chronic Pain
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/13/2008 6:37 AM (GMT -7)   
Hi Dawn and welcome. I went to a new rheumy last week and I flinched before he even touched the tender points cause I knew it was going to hurt. tongue My body always feels like I have been beaten all over to some degree. I'm use to that feeling and unless it gets really bad I don't pay much attention to it.
I hope after you get a list of symptoms and go to your doc armed with all the info you will learn on here you will get a dx.
Hot baths, massage showers, heating pads or rice bags are our defense against soreness.
Good luck
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
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Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 10/14/2008 4:54 PM (GMT -7)   
Hi Dawn and welcome-

I had pain off the charts when my fibro hit, severe depression and fatigue. I was so sick- Hang in there and don't stop till they get this figured out for you. Are you on any medication? And if not you stated you had depression, please get treated for that right away. You will feel better on anti-depressants and it does help the pain also for me.

Keep us posted on how you are doing, they are "the best" here so you have come to the right place!
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

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