New, just looking for support

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Banana Bread
Regular Member

Date Joined Oct 2008
Total Posts : 57
   Posted 10/14/2008 4:12 PM (GMT -7)   
So, after 11 years of being ignored by doctors, I finally have one who listened to me.  She thinks I have fibromyalgia and I'm being referred out to a rheumatolgist for confirmation (although I can't be seen until mid-December, that's a whole other frustrating story).  I came home and did a little research and frankly, I'm relieved.  I feel like I finally have an answer to why I feel like I'm 85 when I'm only 25.  Things are making sense and falling into place (aha! Fibrofog! So that explains it!).  I have one of those annoyingly active husbands who thinks it's all in my head and two small kids who demand constant attention and I am just getting run ragged.  Every day it seems to get worse and I just don't have anyone to talk to about it.  I can't take any medications because I'm breastfeeding, but any suggestions on how to manage the pain and extreme fatigue would be helpful.  I look forward to getting to know you all!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 10/14/2008 4:40 PM (GMT -7)   
Hi, Banana Bread, and welcome to the fibromyalgia forum!  We have all been told that it's all in our heads so you are not alone there.  It's difficult when your spouse thinks that but I think I can arm you with some information to help you and to help him understand this illness.
Check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro.  There is a link to symptoms and there is a link called, "Doctors Respond to New York Times Article".  I really like this link because learned doctors explain fibromyalgia so well and that helps to prove that it is not all in our heads. 
There is also a link in there about malic acid/magnesium supplements.  I started using these last December and they have helped me a lot with pain and fatigue.  In that link there are other links that explain how it works in the body.  Now, malic acid is found in apples and magnesium is found in a variety of foods so this supplement may be alright for you to try while breast feeding.  Ask your doctor and see what they say.  It doesn't work for everyone, but many members have had good success with it.
Hot showers, rice bags or Bed Buddies are wonderful.  Moist heat helps a lot.  The rice bags and Bed Buddy are heated in the microwave and give off moist heat.  Gentle stretching exercises help a lot too.  There is a link to them in the Fibro 101 thread, too.  You need to keep moving.  The more you move the better you feel.  If you sit or lay too much, you will be stiff as a board.  I like gentle massages too.  They have helped me feel better.
Besides reading the Fibro 101 thread, read back posts.  There is a world of information in them.  Also, ask questions here.  We have a great group of people that have good ideas on how to live with fibro and have a full and enjoyable life.  Keep a positive outlook on life and laugh...especially where the fibro fog is concerned.  Count your many blessing and focus on things other than the pain and it does seem to fade in the background.  Your baby will help in that department.
I'm so glad you joined us and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Oct 2008
Total Posts : 90
   Posted 10/14/2008 4:40 PM (GMT -7)   
I had that exact same feeling when I got my tentative diagnosis after five years. I started crying in the doctor's office I was so relieved. It was the first doctor who had ever listened to me. I'm glad you had the same feeling - its a weight of the shoulders. I also share the same feeling about feeling older - I usually joke around that I'm 21 going on 65. I hope that you get some other treatment that can help.
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41841
   Posted 10/14/2008 6:48 PM (GMT -7)   
Hi Banana bread,

I am so happy that you found this site. As said above, read the fibro 101 thread and that will give you so much information.

I think that you will find that this is a really good forum. The members are so kind and compassionate. They are also very understanding. Once you have read some of their posts you will realize that you are not the only one going through the symptoms of fibromyalgia. That way you don't feel so alone with all of this.

Keep moving like Sherrine said. If you don't you will feel worse. You not only get stiff as a board, you will notice the fatigue that much more. Jeannie had a good thread one time about our breathing. We don't get enough oxygen in our bodies. That is why we get so tired all of the time. Also we don't get enough in our muscles, that is one of the reasons for the discomfort.

Keep posting, we are all here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 10/15/2008 7:16 AM (GMT -7)   
Hi Banana Bread and welcome-

Bless this Dr's heart and now you can finally get on with your life and know what your dealing with! I'm new to fibro and this group has been a godsend for me and I know they will be for you also.
Keep posting and join us on our daily check-ins when you can. (With two little ones- your just a tad bit busy)

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 10/15/2008 10:13 AM (GMT -7)   
Banana Bread,
Welcome to HW. Two kids and breastfeeding along with fibro is enough to wear anyone out! Been there, done that and almost pushed myself past the point of no return trying to be supermom. You can do the Malic Acid, as Sherrine said, and also, I'm gonna post a gentle yoga link for you. It's not weird poses and strange bends and twists, it was designed for peeps with arthritis. You can do it on the living room floor with a folded blanket for a pad. When you start out, just do 3 or 4 repititions of each movement, and only do it every other day for the first few weeks to let your muscles get in shape slowly with less pain. The resting part of the movements is wonderful and you will start improving the way you feel within a few weeks.

If tylenol is permitted by your doctor, take that after your first few sessions to help with post yoga ouchies that come from muscles that don't want to stretch. If you get the kids to do this with you they will think it's fun and not realize they are learning something healthy that will stand them in good stead for the rest of their lives. I don't know how long this link will be active so you may want to print it for your continued use. Hope this helps.

Flexibility Yoga Series
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Banana Bread
Regular Member

Date Joined Oct 2008
Total Posts : 57
   Posted 10/15/2008 12:32 PM (GMT -7)   
Thanks everyone!  I'll definitely look into the malic acid.  The yoga sounds great too, I used to go to a class but it kicked my butt. tongue
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