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Date Joined Jun 2006
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   Posted 10/14/2008 7:05 PM (GMT -7)   
Well, as hard as I would like to not have this fibro symptom, I do.

I have been getting dizzy when putting myself in a upright position in the water while swimming, from moving my head in a circle while turning in the wheel chair, and from just walking and turning.

This is considered a symptom of fibro but, I will discuss this with my doctor later on this month.

Anyone else feel like they are going to faint but don't?


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Date Joined Feb 2003
Total Posts : 5514
   Posted 10/14/2008 8:29 PM (GMT -7)   
Yup, all the time.  I'm seeing a physical therapist that specializes in rheumatic diseases like lupus and Fibro.  I'm hoping she has some answers as to why we get dizzy.  I've been reading up on Myofacial Pain Syndrome.  The big muscles on either side of our neck can cause dizziness if they get "injured", like a fibro type injury.  I'll be asking her about that too.
It's super annoying isn't it.  Sometimes my balance is so bad I can't leave the house.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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Date Joined Apr 2004
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   Posted 10/14/2008 8:48 PM (GMT -7)   
This sounds like low blood sugar to me... Just my 2ยข but these are symptoms I experienced when I was first diagnosed with diabetes. Could also be inner ear problems... Wish I could be more helpful.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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Date Joined Jun 2006
Total Posts : 1156
   Posted 10/14/2008 9:31 PM (GMT -7)   
Thanks for the 2 cents Jeannie.

Since I exercise so often I have a heart rate that is in the 50s which is very slow. In addition, I usually have low to normal blood pressure. those can cause this problem.

However, I was reading about chronic fatigue symptoms and this is one of them. In addition, it is a symptom of fibro also.

I do not want anything else to be wrong with me so I sure as heck do not want to contract diabetes. However, I tested in the normal blood sugar range a few years ago.

Low blood sugar and not eating enough is possible. I supposedly burn 2000+ calories per day in the pool alone. It feels so strange to have to lose weight by eating enough to sustain endurance exercise.

Oh, I figured something out. If I do not swim I end up in bed in pain. Darn.


Thanks folks

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/15/2008 8:08 AM (GMT -7)   
I get dizzy too when I get up and start walking. I take my BP and sugar and they are both fine most of the time. Have you had your arteries checked in your neck Donnaeil since it is happening when you turn your head.
Ginny all the muscles in my neck are a mess and the jury is still out on whether I have CFS along with fibro and MPS.
I have had but it is rare for me to have dizziness when I am sitting. That usually is a drop in BP or sugar.
luv and hugs
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Regular Member

Date Joined Jun 2008
Total Posts : 261
   Posted 10/15/2008 8:53 AM (GMT -7)   
You're not alone. Dizziness was actually the first thing in a chain of events that led to my diagnosis of fibro. I find that I tend to get dizzy after I'm on my feet for awhile. The time it takes for the dizziness to set in varies, it could be anywhere from 10 minutes to an hour.

There are also random times when I feel dizzy when I'm still sitting down. Those times I really feel like I'll pass out if I don't lie down, but so far I haven't actually passed out.

I had a ton of tests done and everything came back fine and there was never any cause found for the dizziness, so it has to be something to do with the fibro. The funny thing about fibro is that it can cause almost every problem you can think of.

Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

Regular Member

Date Joined Oct 2008
Total Posts : 90
   Posted 10/15/2008 9:11 AM (GMT -7)   
I get dizzy constantly, especially after I started taking Lyrica but I've always been dizzy. Lately I've been sitting in class and I'll feel like I'm going to faint but all that happens is I feel like I can't really move much. Its pretty weird, but anyway - yeah I know what you mean. I think its pretty common.
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~

Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 10/15/2008 10:25 AM (GMT -7)   
I've had a real problem with dizzyness for years now.  Mine started with an elevated prolactin level in my pituitary gland.  It is usually high due to a tumor but my scans are always fine but with it elevated it fools my body into thinking it's pregnant so nausea 24/7 and for years it was hell with infertility. Since my body thought I was already pregnant I wouldnt ovulate and had to be on injectable drugs for 10 years and still never had a baby but it turned out ok cause me and that hubby got divorced and I sure wouldnt want a baby connecting us,God knew best on that one. Since I got fibro though it has gotten even more out of control.  I now have to use Phenegran(sp?) suppositories along with the Meclizine tablets I take for nausea.  The Lyrica has caused some virtigo as well but mostly if I get up too fast from a sitting position or if I am bending over and stand too fast.  There are meds that you can take until you find out whats going on.  The meclizine can be found at most pharmacy's for about 6-8 dollars for a bottle of 120.  Without the nausea meds I wouldnt be able to function at all and traveling in a car or by bus would be out of the question.  I hope you find out whats up soon but until then you might want to give the meclizine a try.  It also is great for anyone taking narcotic meds if they make you feel sick.
Soft Hug's,
Mom of one gramma to 4 lover to One
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Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 10/15/2008 5:21 PM (GMT -7)   
Thanks folks. Some days I feel like a perpetual motion sickness machine. lol

Thinking back, it was this vertigo that caused me to fall down a stair case and made my fibro worse.

According to my daughter I have always had a balance problem. Gee, I must have forgotten due to fibro fog.

Ginny, I am so sorry that you cannot leave the house very often due to this. I hope they find help for you.

I will ask if there is something I can take on bad days. My life span is another 30+ years, I need to feel stable. lol

Thanks for all of the responses,


Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 10/15/2008 8:41 PM (GMT -7)   
Yes, I have it too, but not all the time. You can get meclazine (sp?) for it. You have to as the pharmacist at the drug store - they keep it behind the counter.
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