I Finally have a Partial Diagnosis

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Regular Member

Date Joined Aug 2005
Total Posts : 296
   Posted 10/23/2008 6:03 PM (GMT -7)   
I went to see the new dr today and boy and I glad I went, I almost canceled because I was in so much pain today. This new dr was amazing and so caring and listened to every word that came out of my mouth. She told me that my blood work I had brought with me looked great and held no clues. She did say that since this came on after my mini Crohns flare that it could be that I am fl aring without the stomach issues since I am inthe bathroom alot. She said that if the small bowel follow thru comes back ok then we could possibly rule out that issue, Although if it is a flare then I need medication and it may help with the joint pain......................BUT..................And this is the part that made me actually break down in her office...............
I was positive in almost all the pressure points for Fibro!!!!!!!!!!!!!!!
So she wants me to have more blood work, 2 will check for RA markers that weren't tested for yet, one will be a Crohns thing and one other one that I can't remember and then vitamin D....She is also sending me for exrays of the areas that are bothering me the most. .......I have to go back in 3 weeks after I see the gastro and have the SBF and then the blood work and xrays........Busy 3 weeks but it will be worth it.
Surgery Aug 3,2007...15 inches small and 3 inches of large intestine removed. On no meds and in my first flare since.
"Part of the secret of success in life is to eat what you like and let the food fight it out inside." Mark Twain. I love that one!!!!

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41844
   Posted 10/23/2008 7:48 PM (GMT -7)   
Hi eyesoffire,

I am glad that you have some kind of diagnosis, even if it is only partial. If you tested positive for that many tenderpoints, it probably is so. If your vite D is low, that also points towards fibro. I know how rough it is without an actual diagnosis, but it looks like you are getting somewhere.

The exrays will rule out other things that could be going on. So it sounds like she is very thorough. That is good.

I hope that you keep posting and letting us know how things go. And remember that we are here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 10/24/2008 11:11 AM (GMT -7)   
I understand what a relief this must be for you! Congrats on finding a good doctor that cares and you seem compatible with :)

<FONT color=#0000ff>Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 10/24/2008 1:50 PM (GMT -7)   
Sounds like you found a real gem there!  It's good that she is taking all of these tests to rule other things out first.  Karen is right about the Vitamin D, too.  I was low in it and have to take extra.
I have Crohn's too and I think I'd rather have fibro than more problems with the Crohn's disease.  At least it doesn't mean any surgery. 
The next few weeks will go by quickly and you will get the help you need...just in time for the holidays!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 10/25/2008 7:30 AM (GMT -7)   
Hi Eyes-

So nice to hear that you found a good Dr.! I know this will be a busy three weeks, but like you said it will be worth it- keep us posted.

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/25/2008 8:35 AM (GMT -7)   
Eyes I found a new rheumy that made me feel so good. I have nothing against my GP but fibro and arthritis is not his specialty. I go back this week and I'm looking forward to it cause I know he believes in me. We spent an hour and a half together the first visit and I could tell we connected and that is such a biggy for us. Okay, for me I'm hoping he can do something for the arthritis in my right hand more than fibro but if he has some tricks for the fibro that's great too.
I really wish everyone with fibro could find docs like these, they are out there.
I hope everything comes back okay with the crohns and you get the complete dx.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Member

Date Joined Oct 2008
Total Posts : 14
   Posted 10/25/2008 9:36 AM (GMT -7)   
i have fibro, and i had blood work done last week, and it came back that my calcium is very high, what could that mean?

Veteran Member

Date Joined Sep 2008
Total Posts : 532
   Posted 10/25/2008 1:40 PM (GMT -7)   
Good luck, I hope that this doctor has helped you keep me posted. I need to get the info from you again I lost the name and number and did not have your email bookmarked.
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