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Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/25/2008 6:13 AM (GMT -7)   
Help. Is this Fibro or something else? I wake up with an excruiciating pain in my lower left jaw associated loosely around two teeth and a socket where a tooth had been but was removed ten years ago. Then, after about thirty minutes to an hour, it moves straight up to the two teeth directly above, and is even more excruiciating. I saw a dentist  about a month ago who pulled a wisdom tooth that was at the very back on the opposite side of my mouth. That didn't give me any problems once it was gone. Then she said I had two cavities in the very front of my mouth that needed fillings. I am just waiting to pull together the hundred dollars co-pay to have that done. However, this thing on the left side is a killer. I took 50mgs. of Amyltriptilene after the tylenol 3 and 2 aspirin I took didn't even budge it. I have to figure out what this is so I can take steps to get it fixed. It absolutely floors me. Makes the other Fibro seem like a scratch. This is why I think it's some kind of nerve pain because traditional painkillers do nothing for nerve pain. Anyone? sad

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41844
   Posted 10/25/2008 6:51 AM (GMT -7)   
I wonder if lyrica or neurontin would help with that, they both work well for nerve pain. Just a suggestion.

Hope that this helps some,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Oct 2005
Total Posts : 315
   Posted 10/25/2008 6:56 AM (GMT -7)   
I certainly cannot diagnose you but can just offer up some possibilities.
One is possible trigeminal neuralgia, which is facial nerve pain that can affect your maxiallary and madibular nerves and can cause severe nerve pain in both the upper and lower jaws. It can also cause these pains in your cheeks and lips. There are several medications and injections that can be tried to hopefully reduce the pain.
Another thing that might be possible, which is what happened to my mother, is dehydration. My mother had one-sided severe pains in her teeth and jaw and kept going to the dentist. The pain would come & go, though. Sometimes she had none, other times it would attack like crazy. Her dentist thought it was because she wasn't drinking enough. I personally thought that sounded odd, but she told me she probably wasn't drinking enough. So she started drinking alot, water and juice, and said shortly after her jaw pain stopped. This was a few years ago and I've not heard her complain of it again. So it sounds strange, but I perhaps in her case, not drinking enough really was the cause.
Also, perhaps it could be TMJ related...or even some sort of compression in your upper cervical spine; possible nerve damage in one of your teeth; or some other medical problem that causes those symptoms.
I personally think if the pain is that bad, and seems like nerve pain...and is not helped by painkillers, then it just might be nerve pain. I know painkillers do not help my nerve pains either. I've been taking Lyrica since Feb. for nerve pains all over my body and it does help alot, though I still get some episodes with really severe pain, but steroids seem to help. Now I wonder if you took a Medrol dose pack....if that would help your pain.
If  your dentist cannot figure it out, then if I were you, I would try to see a regular doctor to investigate as It may not actually be tooth related.

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 10/25/2008 7:20 AM (GMT -7)   
Tyno, do I ever feel for you! My more noticeable symptoms started in May, with facial pain, and it hasn't gone away since. It is always changing, from a mild pinch and burn on the apple of the cheek, to a deep boring pain in the upper jaw with stabbing pain in the fleshy part of the cheek, lower jaw, pressure in the temples, and also went into the teeth at the worst of it. I got my teeth checked too, and she couldn't find any reason for the tooth pain. I agree, I think part is neurologic pain, but I know in my case, part is also muscular. Doubling up on Advil and Tylenol helped a bit for when it went in the teeth... it took the edge off... but didn't help with the jaw or the shooting pains. Sometimes the whole sides of my face get sore, and a warm compress helps with that a bit, that's the muscular part. Never cold! I tried a cold compress for the teeth at one time, adn I just about went through the roof. I noticed a decrease in the pain after I started Amitriptyline, but I'm not sure if that was a coincidence or the drug. It seems to want to come back hard again, but each time it gets revved up a bit, and I think here we go, it goes back to sleep. So now I just have a constant ache that I'm so used to I hardly notice.

I know, not much help! But at least you know you aren't alone. And the one thing I found out this summer is that it will not stay. Fibro pain likes to move around, right? I hope it's the same in your case, and the tooth pain will ease up for you. If you do get any answers, please share though. My doctors were at a loss. He was tentatively thinking trigeminal neuralgia, but my pain wasn't consistant with it. Keep us posted on how you are doing.

Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/25/2008 9:59 AM (GMT -7)   
Thanks all. I just took a full 75 mgs. of Amyltriptilene, which will knock me out shortly. I also brushed my teeth with a special sensitivity reducing toothpaste and rinsed with warm water. The warm water seemed soothing which is what convinced me it's neuralgia of some sort or other.I also dipped the toothbrush in ambesol, which did nothing so again, it's got to be neuralgia. my Mom has TMJ. I remember  her saying she spent two years running back and forth to the dentist, but he couldn't find any pathology, eventually, they agreed it was TMJ. She takes some kind of nerve blocker for that. neurontin, I think. Thank-you for your much needed support. I.m fixing to conk out from the amyltriptiline. I have carte blanche from both my GP and pdoc to use as much amyltriptilene as I need to get the pain under control. I'm almost tempted to find a needle and shringe and inject ambesol in there. Tempted, but of course I won't do that. Just miss this beautiful Indian Summer Day laying in bed with a heat pack on my jaw.

Green Grove
Veteran Member

Date Joined Oct 2008
Total Posts : 2424
   Posted 10/25/2008 11:08 AM (GMT -7)   
Hope you get to feeling better tyno :)

Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/26/2008 5:47 AM (GMT -7)   
All I can do is take amyltriptilene in the daytime. It stops the pain but knocks me on my butt. Also, reading up, there was a suggestion to brush teeth and not rinse the toothpaste off that aea. On top of that, I've run out of ambesol and now am working my way through a bottle of oil of cloves. unbelievable, aching pain upper and lower left jaw. Yikes.

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 10/26/2008 5:36 PM (GMT -7)   
I have jaw displacsure and when it happens I get what seems the most severe toothache, went to dentist and said pull the thing out as the pain was excruiating and after testing it he said it was nerve transverance and he was right but when it flares nothing gts rid of it except sleep and nerve numbing med from chemist for the tooth and surrounding area.    sue2z confused confused
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/26/2008 11:42 PM (GMT -7)   

Wow. That's really odd. So, if my jaw allignment is off , which it may be because I think I may grind my teeth in my sleep, then rather than feeling the pain in the jaw (like in the hinge), it shows up as a toothache. An unbelievable toothache. That makes sense because it seems to begin with my 3rd lower left mplar, and then about twnety minutes to half hour ir shows uo directly above it and is even more painful. That pain lasts till I can get some neuralgia meds into me, which knock me on my butt (amyltriplilene.)I've gone through all of my ambesol, a bottle of clove oil and will be running out for more shortly (when the stores open). Then I'll call Dentist. Yhanks Sus2z


New Member

Date Joined Oct 2008
Total Posts : 3
   Posted 11/9/2008 6:17 AM (GMT -7)   
Please try the neurontin. Your symptoms sound a lot like mine. Cold, hot, pinch, toothaches, burning sinuses, all on the left side of my face, sometimed my ear too. Lyrica (in the nurontin family) has helped, but I'm having some side affects. (anxiety, stress) I'm here on the boards to check that out. Good Luck, your not alone.

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 11/9/2008 7:48 AM (GMT -7)   

Hi Tyno-

Sorry your having so much pain! I know what your going through as I get this too. It comes and goes. Lasting anywhere from a week or two to just a few days. I get most of my pain in the right side and it affects anywhere from 1 tooth to 4 teeth. And it gets bad!!!   shocked  And the pain can go deep into my ear also. I do have TMJ and grind my teeth at night. I wear a mouthpiece and before I got fibro the mouthpiece helped alot, and now the piece does very little. The only thing I have done for it is make sure your taking something for the pain consistently, warm packs to the jaw and just ride it out.

How are you feeling now? GamJill


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

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