Diagnosed with fibro... what vitamins/minerals do you all take?

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Date Joined Sep 2008
Total Posts : 43
   Posted 11/3/2008 5:03 PM (GMT -7)   
Hi everyone!! I met with my rheumatologist two weeks ago and was diagnosed with fibro. It took 3 looooong months, but at least I know what I'm dealing with!! He prescribed me Lyrica, 50mg at night, but man, did it make me feel like crap!! I will give it another chance maybe since I did start it at the same time I was making the switch from Celexa to Cymbalta so that also could have made me feel like crap. I will see my PCP and actually ask about this because I have read that Cymbalta has also been shown lately to help with fibro. Anyway, back to my question, I have read in some other posts about malic acid/magnesium combo. I was wondering if anyone else had some suggestions? I've had tons of bloodwork and I did come up as Vitamin D deficient so my doc prescribed me Vitamin D for 3 weeks, but that's all anyone really said anything about. I'm going to ask about Vitamin B-12 shots to help with my energy. Alrite, I've babbled enough!!
"Dwell not on the past. Use it to illustrate a point, then leave it behind. Nothing really matters except what you do now, in this instant of time. From this moment onward you can be an entirely different person, filled with love and understanding, ready with an outstretched hand, uplifted and positive in every thought and deed." Eileen Caddy
Diagnosed: Anxiety/Panic Attacks, Depression, Allergies
Had gallbladder removed 10/2005
Quit smoking 10/2005 YAY!!
Medications: Klonopin 1.5mg daily, Celexa 30mg daily, Singulair, Rhinocort, Multi-Vitamin and Calcium

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Date Joined Apr 2005
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   Posted 11/3/2008 5:54 PM (GMT -7)   
Bum, you seem to be taking what most of us take.  I take the malic acid/magnesium supplements, extra calcium, and extra vitamin D, since I'm deficient in that.  Many of us are, you know.  Some need the B vitamins but you are getting that too.  Looks like you are on the right track!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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Date Joined Jun 2008
Total Posts : 1279
   Posted 11/4/2008 6:43 AM (GMT -7)   
Hi BumBum-

I started the vitamin B-12 subl tabs about two weeks ago and not sure if I have noticed any changes. I figure if anything it can't hurt taking them. Let us know if the B-12 shots help once you start them, I am curious. I do want to start extra Vit. D. too.
Let us know how your doing with your med changes-

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

getting by
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Date Joined Sep 2007
Total Posts : 41827
   Posted 11/4/2008 7:18 AM (GMT -7)   
Hi Bumbum,

I think that you will find that the supplements really do help. I take 2000iu of vitamin D everyday. It really helps with the mood and feeling better.

Best wishes to you,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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Date Joined Aug 2007
Total Posts : 6067
   Posted 11/4/2008 8:31 AM (GMT -7)   
BumBum I don't like changing more than one med at a time so you can tell what it is doing. I'm going to be switching from celexa to cymbalta too. I've been saying that for a long time but I can't seem to find a time when things are calm and not busy in case I have side effects from it. I have had three docs now suggest it to me my GP, pain doc and rheumy so I figure they all can't be wrong.
I went to rheumy last week and had B12 and D on my list to ask him about to see if I had, had them tested in last blood work and walked out and forgot. I need to call the office and see.
I'm glad you got a dx and now know your enemy.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 11/4/2008 5:02 PM (GMT -7)   
BumBum, alot of research also shows that by cutting out any caffiene, artificial sweetners especiall aspertame and carbonated beverages help.

I am a huge tea drinker and went from decafinated teas for completely caffiene free ones,, i find that rooibos tea is really good and am not really missing pop or sweetened drinks, if i do want something sweet i use honey lemon or lime ( which are also good for detoxing and cleansing the body)

if you are going to take the malic acid and magnesium make sure you have extra calcium and vitamin d as it helps to metabolize it better

Also try to keep a regular schedule as much as possible i have found to be most helpful

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 11/4/2008 8:03 PM (GMT -7)   
I started the malic acid/magnesium combo, and I couldn't believe the difference it made in my aches and fatigue. I also take calcium with vitamin D from the advice from here. I jsut got some blood work done, adn I'll be seeing my doctor next week. I'm curious to see what the results are.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Regular Member

Date Joined Oct 2008
Total Posts : 111
   Posted 11/5/2008 3:26 AM (GMT -7)   
I haven't been able to ask about malic acid and magnesium yet but I am on Vitamin D supplements. My rheumatologist prescribed me 50,000 units once a week and 1000 units daily. I don't think you should stop taking the Vitamin D completely after three weeks, I recommend taking 1000 units a day after that. From what I've read most healthy people could use the supplements anyway, let alone us deficient people.

I also recommend reducing caffeine and artificial sweeteners. As a young person, I drank soda all the time before I got fibro. Now I find that the carbonation makes me sick and the caffeine makes me feel lightheaded. I drink mostly Snapple's "natural" Kiwi Pear juice and V8 Fusion. Sometimes I drink Jones cream soda when the mood strikes me (since going to Europe for a month I can't stand sodas with high-fructose corn syrup anymore). In general though, it is healthier to avoid caffeine and artificial ingredients. It may have nothing to do with the fibro, but it helps me.

Diagnosed with arachnoid cysts February 2002, fibromyalgia February 2008.

I think I should stop getting diagnostics done in February...

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 11/8/2008 6:06 PM (GMT -7)   

I totally agree with the artificial sweeteners and caffiene i noticed a big difference in how i felt especially after giving up soda, i had a fresca the other day after about 2 weeks of not having pop and wow it was sweet and felt worse after.. won't do that again

I have found a big difference after only 2 weeks on malic acid/magnesium i get so fewer charlie horses and cramping in the legs . Sleep is still not great but i found getting off alot of the prepared foods have helps with how i am feeling although i find having salads instead of fries and opting for the chicken items instead of burgers is more satisfying... i will be doing a complete system detox in january. Which should help get rid of any residue left in my system

Sera Smiles
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Date Joined Nov 2006
Total Posts : 671
   Posted 11/8/2008 8:11 PM (GMT -7)   
Carnissa, what can you tell us about your system detox? Thnx!

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 11/10/2008 5:17 PM (GMT -7)   
well basically a detoxification process of the body's 7 channels of elimination: liver, lungs, colon, kidneys, blood, skin, and lymphatic system
helps get rid of waste toxins and anything else that gets build up over time, especially meds
 you can get 7, 15 or 30 day detoxs,, i find the 30 days are better as they aren't as harsh as the 7 days
this is a good one for first time detoxers or what they call sensitive cleanser  but i find it is easy to do and doesn't make your system go into shock like some others
they recommend you do a detox twice a year  once in the spring and then again in the fall... my mom used to make us to do them when we where younger and man i hated it but if i had known how good it was for me i would have kept it up
i would go to your local natural health food store and they could find one that is right for you but like anything you should always consult your doctor to make sure nothing will interfere with meds
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