New here....starting my journey towards dx of Fibro...or something???

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New Member

Date Joined Nov 2008
Total Posts : 12
   Posted 11/19/2008 8:34 PM (GMT -7)   
sad  i all....
As you can see by the title of my thread...I'm new here.  I'm not really sure where to start...but bottom line is: I think I have fibro and I'm looking for support, advice,etc.  I am 31 years old, married to a great guy and have an adorable one year old little boy.  I am a RN and I work in telephone triage.
Ok....hmm..where to start.  I guess I've had some of the sx of fibro for quite some time...probably years...but my sx were always fairly mild and not enough to slow me down too much.  The main stressor in my life has always been endometriosis.  I was formally dx in 2000 but I know I had it long before that.  I've had numerous laparoscopies...5 I think....have bee on countless medical tx including Lupron...but it keeps coming back regardless of what I do. I know there can be a possible link between endo and fibro..that's why I mentioned it.
Back to the symptoms really seemed to flair about five months after I had my son. I just chalked it up to my endo sx coming back or the added strain of carrrying around an infant all the time.  It was probably May of this year that things started getting bad.  I started waking up and literally feeling like I had been hit by a truck...massive fatigue, frequent headaches, and very sore, achey "flu like" muscle pain. Like I said...I at the time...just assumed my endo was coming eventually..another laparoscopy was scheduled for August of this year.
During the time I was waiting for surgery...things just got worse and many strange sx started occuring.  I started having (and still do have everynight) horrible soaking nightswets.  I feel like I am so cold all the time but then I wake up in this dripping sweat. I have been having very, very frequent severe migrane like headaches.  The muscle pain and fatigue are the worst they have ever been....I especially notice it in the cold weather..or if the weather changes.....(I live in Wisconsin). I notice it especially in my neck, shoulders, elbow area, hips, and low back.  I also have noticed just sporatic joint day it's my knees, the next day its my elbows,etc,etc.  My muscles cannot stand any pressure applied to feels like thy are bruised.  I especially notice it if my son pushes off on me with his little feet,etc. I have also noticed that I bruise extremely easily.  My PMS has also been very bad recently....and the fibro like sx really flare during this time.
My other big problem is some right sided upper back pain.  I've had it since September...I went to my PCP and he dx me with an ulcer and put me on prilosec.  Well...the med hasn't helped...the back pain is severe at times...worse when I take a deep breath and worse when my other sx are worse.  I wonder about costochondritis...but like I said...the majority of my pain is in my back.
I also should mention that I had a horrible reaction to the flu shot and had a similar reaction three years ago.  about five hours after the shot...I developed wheezing, coughing, and SEVERE body aches and fever.
So...I finally got sick of things and went to my PCP's partner on Monday.  She said fibro could be a definite possibility but wanted to rule out other things first.  She ran a cbc, sed rate, lyme titer, and thyroid tests.  Everything came back normal.  So..that brings us to today...I have to talk to my doctor to see what the next step is.  I'm hoping for a rheumatology referral.
Ok..I must stop..I'm sure you all are sleeping by now.  Just wanted to introduce myself and my story. Do any of you think this sounds fibro like?  Ok...thanks for reading and I hope to get to know you all very soon.

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 11/19/2008 11:07 PM (GMT -7)   
Umm, maybe you should check out chronic fatigue also.


Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 11/20/2008 12:13 AM (GMT -7)   
You have done everything right, the next step is to get  referal to rheumy.  I sleep all the time  dont know what it is.  sue2z :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 11/20/2008 2:26 AM (GMT -7)   

Welcome Olivia,

Boy, you've really been going through alot! Many of your symptoms sound like Fibro. Hopefully you will get the Rheumatology referral because that is the next logical step. He will rule out anything else that your Dr. didn't & hopefully will be able to start helping you with the pain.

I also had all the crazy symptoms & I used to put them off to something else until I just couldn't handle it anymore. The fatigue and pain were my worst symtoms. I'm so glad that I finally gave up and got help. The meds haven't taken care of everything, but they help me get through the bad days.

Good luck and keep us posted. I hope you get to feeling better. Hugs!


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus

Regular Member

Date Joined Oct 2008
Total Posts : 257
   Posted 11/20/2008 4:40 AM (GMT -7)   

Glad you shared your story - I'm fairly new here too, and it's helping me understand more and more what I'm dealing with. I hope you will experience the same benefits.

Have you had your vitamin D level checked? When I finally got to a rheumy, it was the first test he ordered. It's common for folks with fibro to have a D defiency.

*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41908
   Posted 11/20/2008 7:34 AM (GMT -7)   
Hi Olivia,

Welcome to the fibro forum. There is a thread titled fibro101 if you would like to look at it, it is the second thread on the first page. I think that you will find it very informative. I hope that you look at it.

You will find that you have a lot in common with the other members and that does give us some comfort. It is nice to know that you aren't the only one.

I hope that you stay on the forum, we have a wonderful group of members here with much information for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 11/20/2008 8:01 AM (GMT -7)   
Welcome Olivia, nice to see you here. I'm sorry that you having all these difficulties. I'm still very new to fibro, although I've had some mild symptoms off and on for years, I can only connect them all now. I'm still waiting for an official dx, but my NP is convinced I have fibro, and so am I now, after sharing so many stories of similar symptoms with everyone here. The best thing to do is read and ask questions as you start to make sense of your body. Hopefully a rheumy will have more expertise to dx you (I'm hoping that will be in my case). I know what you mean about your baby hurting you. I can not have anyone touch my back without causing pain, and I have one child who liked to headbutt when he was younger. He woudl run full tilt at me, usually when I wasn't looking!
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

New Member

Date Joined Nov 2008
Total Posts : 4
   Posted 11/20/2008 6:43 PM (GMT 0)   
I just joined today and read the bit about the bad reaction to the flu shot. I had my first flu shot 3 years ago and when i think about it that is when my fibro started to get debilitating. I also had the worse flu of my life that year. Needless to say i've never gotten another one. But considering the fact that for a while flu shots had mercury in them this isn't really that big of a surprise.
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