Genie, I am going to go ahead and honestly say I didnt read EVERYTHING, but I read enough. Genie, theres hope, I know, and Im going to tell you that I felt like you were discribing ME. Im the EXACT same as your daughter. 17, Senior, Fibro since I was about
12, but everything you described...it was....I dont know! I was like "oh my goodness, shes discribing ME..."
I hope maybe I can help. You think your daughter would enjoy someone to talk to about
it? I am up for that, she can email me or something if she wishes, just click on my name!
I am extremely determined, and smart, I work VERY hard at school so I understand how hard it is to have this and try to live "normally."
The one thing that STRUCK me most: The nausea she feels when she doesnt get sleep or wakes up early. I havent been able to find someone who knows what this is like. I have experienced it for a few years now! Its horrible and I offen think of it when planning things. One time, I BEGGED my parents to change the time when we were leaving for a trip because I know that waking up early or not getting sleep makes me SO sick... But, I TOTALLY understand what you are talking about
so... maybe that helps.
Im not sure were to even start because I just get everything you said and you were talking about
me...pretty much everything.... Im at school right now so, I dont have time to say eveyrthing that I want to, Im about
to go to my next class...But, I will be back later..
Also, for ALIZA: I will be going to college soon, I already have actually, but my question is how were you able to get all the accomodations? I would LOVE the not writing thing, it KILLS my hand! Extra time would be nice as I OFTEN cant remember things that I KNOW I KNOW! lol Did you have to get a doctors "note" or did you just go to your colleges' office and talk to them about
your condition?? I am very curious as to the accomodations my college could offer me....thats something I will look into definetly. Im not sure if my doctor would approve it though... Im still being tossed from doctor to doctor...I will be seeing a new Pediatric Rheumy in Dec. 23 so....
Anyways, I would appreciate it Aliza....and Genie, I understand your daughter an dwhat she is going through. I am a really good listener and advice given so I would be glad to help s much as I can! I been here a year and a half so I have learned ALOT! Take Care
Lyrica and Paxil (both working quite well might I add!)
"Cracks in the concrete are just reminders that you fall apart
no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to
smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."